Hi all, it's been a while! Well I'm finally back to update on my surgery which I had last October! I would have posted before this, but I had been feeling so down about the surgery that my update probably would have been very negative (I did actually come back to post an update quite a while ago, but there was a VERY anti surgery thread going on which made me feel even more miserable, lol).
Anyway, surgery was pretty rough. I don't know what happened the first night, I was vaguely aware of a fuss around me, but I woke up the next morning in high dependency. Was connected up to a monitor and oxygen and had blood transfusions. Didn't feel too bad that day, but then things started to go downhill. Began to feel really unwell and the pain wasn't good. My body swelled up massively, I was enormous! The surgeon said it was because my albumin levels had dropped and that they had never seen anybody's levels drop so dramatically after surgery. He said they knew my UC was bad, but even they hadn't appreciated how bad it was and that my colon had been a mess. Because of that, my kidneys then didn't want to work properly. Anyway things were getting worse, and I needed TPN - they couldn't get a pic line in so I had a central line. Had a CT scan and I had a fluid collection so a drain was
inserted. Then for the second time, I had to have the dreaded NG tube inserted. I felt like I had tubes and leads everywhere.
Anyway, things finally improved and two weeks later I was moved to a normal bed. I was feeling a lot better and then the morning of the day I was supposed to go home I had really bad pain. Another CT scan showed a much larger fluid collection, so had to go back to surgery for a pelvic washout. Spent a total of four weeks in hospital before going home with a drain, which I had in for another month. Had a couple of hospital admissions after that for dehydration.
I am so grateful to my surgeon. If it hadn't been for his intervention, I would have been forced to have surgery back in May when I was hospitalised as the Gastroenterologist said my colon had to come out that weekend. I definitely wasn't ready for it then and would have been very bitter if I'd been made to have surgery without having had the chance to try LDN. He overrode the GI team and for that I cannot thank him enough!
Well it's been eight months since my surgery, and I now feel fantastic! It's taken a long time, for the first seven months I felt awful, but the last month has been great! I feel just like I did before I ever got UC, I actually can't believe how good I feel! Ive had to wait awhile before having takedown as my first contast x-ray showed a leak in the pouch. My last contrast x-ray was fine, so I have my takedown on Wednesday - I CAN'T WAIT as I don't like having a bag. If I feel as good after takedown as I do now then I will be so very happy! Surgery was hard and apparently I almost didn't make it, but if I continue to feel this good it will all have been worth it.
Thank you to all the people on here who gave me support when I was facing surgery, your encouraging comments really helped me come to terms with everything!