Did you have to use a lot of prednisone before surgery? If so, were you able to completely come off of prednisone after surgery? Endocrinologist feels that even if I have surgery, I will have to remain on a maintenance amount of about 7 or 8 mg for life, he said my adrenal glands will probably never produce cortisol again. It's not a problem if I do, as long as I'm not on a high dose I'll be happy.
I was on and off of high doses of prednisone before surgery but I had been off of it completely for about
a year before. I was steroid refractory so I only responded to high doses of prednisone so I couldn't stay on it for obvious reasons. I was on Remicade the year before surgery so when that failed I consulted with my surgeon. Two weeks later I was in the OR.
I honestly never heard of having to stay on prednisone indefinately....even a small dose. But I'm not a doctor so who am i to say. I have chatted with many j pouchers and I don't know of anyone who had to stay on prednisone afterwards. Well at least not for very long after. Most of us are completely drug free.
DX UC in 2005. Family history of UC.
Tried every drug-even Remicade-Tried diets-nothing worked-wanted my life back!
Step 1: J-pouch surgery (Laparoscopic restorative proctocolectomy w/ temporary diverting loop ileostomy) 6-25-10
Step 2: Take down surgery (Ileostomy reversal) 10/8/10
No more UC and no more drugs!! Very happy with my results of this surgery-got my life back! :)