i saw a new gastro today. not my idea but my mother forced me to go. the doctor was going over all my bloodwork over the past 2 years and thinks i have primary sclerosing cholangitis. he said it usually happens to UC patients but there is no known cause. i started to cry when he told me this because if it gets bad, a liver transplant is the typical treatment. i just figured having UC was bad enough. why do all these other problems have to happen? i am getting some special liver test done on saturday along with more bloodwork than i've ever seen- 12 vials.
and of course, i did ask him about getting an LDN prescription. i told him about the improvements i've been seeing and he says "i think it's just luck and not the medicine. my patients have had no improvement on LDN so i refuse to prescribe it anymore." i told him i'd tried to see jill smith and he said she is not practicing medicine anymore- she's taking an administrative position and leaving hershey. bummer.
so it wasn't exactly a good appointment. he kept asking me about eating meat and saying i should eat turkey and chicken wings since they really aren't meat like beef. i'm not sure what that means but i told him no. this guy is supposed to be the top rated gastro in pittsburgh but he was definitely not open to anything i said.
Did 8 fecal transplants- got much worse.
i'm taking- probiotics, vit d, low dose naltrexone
tried- canasa, pred, 6mp, remicade, rowasa, lialda, endocort, l-glut, vit e enema, VSL enema, aloe vera, NAG, prilosec, zofran, psyllium, bentyl, cipro, flagyl
no meat, dairy, eggs, gluten. include-fresh juices, fruits, veggies, greens, grains, soy, beans, nuts/seeds