Posted 6/15/2012 8:14 AM (GMT -7)
my pain gets very bad, too, ihanna. sometimes i feel like i just wanna faint. i know exactly the "constipated but going to the bathroom anyways" poops you mean. little amounts that you have to strain to get out. very frustrating.
prednisone caused a lot of abdominal pain for me, too, and i'm not sure what you can do for that. i had to start 6mp and remicade with prednisone because it wasn't working. the 6mp took a lot of the pain away and the remicade just made me tired all the time.
is there any position that makes you feel better? taking hot baths is very helpful for me as well as rubbing peppermint oil all over my belly and then putting a heating pad on top of that.
Did 8 fecal transplants- got much worse.
i'm taking- probiotics, vit d, low dose naltrexone
tried- canasa, pred, 6mp, remicade, rowasa, lialda, endocort, l-glut, vit e enema, VSL enema, aloe vera, NAG, prilosec, zofran, psyllium, bentyl, cipro, flagyl
no meat, dairy, eggs, gluten. include-fresh juices, fruits, veggies, greens, grains, soy, beans, nuts/seeds