Sorry you are having problems getting back to being in remission, and suffering so.
Somedude is right about developing antibodies to remicade.
The celiac test is not accurate, it can give you false negatives. And then you have to factor in that some people are gluten allergic and some are gluten sensitive, and there is a difference. Gluten sensitive would be that you get symptoms from eating gluten, i.e. joint pains, gut problems, D, pain, etc...( and many of those test negative for celiac despite the resulting symptoms after ingesting gluten).
How long did you go gluten and wheat free? Also, don't forget there are many hidden sources of gluten as well ( in sauces, ketchup, mustard, etc...).
I would suggest you go back to the basics, and tweak a few things:
- go on bowel rest for a few days to give your colon a rest
- then start a food journal to see what correlations arise
- probiotics and lots of them, are you taking any? VSL#3?
- can you get your doc to prescribe VSL #3DS?
- how often are you taking the slippery elm? and when?
- have you tried L-Glutamine and L-threonine amino acid powders?
- how about LDN , low dose naltrexone?
Although meds failed me, I didn't go as far as the biologics. When it got to that point and the doc told me remicade or surgery, I refused both. At that point, although the SCD diet was controlling the BMs quite a bit ( I was down to 4-5 x per day from 15-20 x per day), I was still bleeding ALOT. And the only thing that stopped the bleeding was LDN, low dose naltrexone, which has put me in total remission.
For more info on the protocol which has put me into remission, please go to this link: https://www.healingwell.com/community/default.aspx?f=38&m=1666318 , and look at the 11th post.
If you would like more info on anything here, or if there's anyway I can be of help, please do not hesitate to ask.
I hope you start feeling better soon, and getting this under control. Good luck.
Rx meds didn't help me. But 4.5 mg LDN +Paleo diet +supplements=REMISSION.Protein shakes w/almond milk,Maca powder,L-Glutamine,D-Ribose,chia seeds.VSL#3,K2,VIt. D3,slippery elm bark powder.For more info,my protocol is the 11th post at this link: https://www.healingwell.com/community/default.aspx?f=38&m=1666318
If you have any questions, you can find my email address at my profile.