My 8 1/2 year old son was diagnosed with UC while spending 13 days in the hospital in late March of this year (for diarreah, bleeding, weight loss, anemia).
He had done very well on the Prednisone (full remission) and just finished tapering off of it last Sunday.
Unfortunately, the last couple of days his stool has started getting loose and today he had diarreah (no blood, though he did have a small amount of blood the other day but we think it was from a large stool that was painfull to eliminate and caused a bit of "damage").
We were hoping to avoid a maintenance med due to possible side effects and not wanting him to have to take it "forever", and have been concentrating on diet, vitamin supplements, and we are about to start a probiotic. We have heard that some UC patients can stay in remission without a maintenance med.
Needless to say, we are disappointed and saddened that the symptoms appear to be returning after the prednisone tapering ended last weekend.
Any thoughts/suggestions are welcome.