My surgeon said it was difficult for him to predict how much each loop ileo will protrude after the first j-pouch surgery. He has done thousands of ostomy and j-pouch surgeries. I ended up with an ileo that did not protrude very much so it was hard to keep the body waste from eating away at the wafer seals. It was a matter of physical fact not inexperience. I had a temp ileo for a year before the loop ileo. It was easy to take care of the temp ileo.
I am allergic to a lot of adhesives but found a company that made an adhesive from pectin which does not bother me.
I would not have a problem going back to a temp. Ileo or to a permanent ostomy. Ostomy life was not that bad just very expensive because my insurance company did not pay for supplies. Supplies ranged between $150 and $250 per month.
My biggest expense with a j-pouch is the cost of Immodium with every meal.
Diagnosed 1987 with lower left ulcerative colitis. Hospitalized often. Mega toxic pan colitis Dec. 1999. Perforated colon and total colectomy April 2011. First j-pouch surgery March 8, 2012. Six other damaged organs removed at that time. Ileostomy reversal June 26, 2012. Aiming to go white water kayaking in August!
Post Edited (Subzeromambo) : 7/26/2012 11:57:10 AM (GMT-6)