So, I think I should start off by telling you all the improvements I've seen since last Wednesday when I started my new medications. The medications are Cortifoam once a day and Salofalk enema 4g once at night. I'm also on prednisone which I'll get to later on.
Reduced urgency to the point where I can even hold it in, no sprints to the toilet
Near zero rectal pain
Reduced lower abdominal cramps after bowel movements
Not bleeding as much as before and sometimes there is no blood from the inflammation (I also have an anal fissure)
Stools are sometimes easy to pass (still need to work on fixing my diet)
Things I still want:
My fissure to heal :( darn thing cuts
open after I pass anything more than a pebble and it starts to leak blood. the cream I'm using is helpful though.
Get rid of hemmorhoids (probably will go away on their own after my bowel habits become regular)
To retain the enema all night. The shortest duration I've retained an enema has been 3 hours.
I really want to get something off my chest and that is I HATE PREDNISONE. An ER doctor put me on it and my (old) specialist didn't like that so he put me on a quick taper (tapering down 5mg every 4 days) so I wasn't even allowed to take it until I saw a response then taper. But on Saturday I got to 15mg and had a really bad migraine. I had to take a tylenol just to relax my head, ugh. Anyways, I went to my family doctor and he told me to cut the 15mg straight to 5mg and take 5mg only for 2 days. I was so relieved when he said that and he explained to me since I wasn't on long term prednisone dosage, it wouldn't cause any problems. I took 5mg today and I have to say, I feel the same. Still having a headache, feeling weak, stressed out, and very anxious. Can't wait to take my last dose tomorrow; prednisone didn't do anything but give me side effects for the past 3 weeks.
Now that you know my situation, how well can you relate to my medications and improvements to your colitis/proctitis situation? The (new) specialist's secretary told me since my prednisone dose is so low now that my symptoms can come back. So I have to call her and tell her how I am on Friday and she will tell the specialist (he's on vacation but can call to help). I've read that mesalamine enemas can take a while to kick in, especially if bleeding is the most problematic symptom, is this true? Another question is, worst case scenario, if I can't hold my enema in for a good amount of time and I have to go, should I stick a 1000mg mesalamine suppository in or just leave it?
You can probably tell, I'm finally seeing improvements but I'm anxious to get even better, haha. After weeks of jumping to different medications just after a few days worth, I'm sticking to something and I just need to be patient. Only if I could fast forward to when I'm in remission :|