Posted 8/6/2012 3:55 PM (GMT -7)
The Ministry of Health has stopped the off label use of IVIG. My doctor is at a loss as to how to provide this very successful treatment to me. He is contacting other doctors; but the word has come from the Ministry so his efforts may be futile. I am in Toronto, Ontario. I am willing to travel, and pay; but honestly I don't have that kind of money. What I do have is the ability to fight and advocate for myself.
I am thinking of writing to my Member of Parliament and Ombudsman for support.
I am going to check with other provinces (although I don't know how)
Does anyone have any other ideas. My next treatments will be in September so I'm trying to be proactive now.