Probiotics for the colon-less

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Veteran Member

Date Joined Mar 2007
Total Posts : 2832
   Posted 8/21/2012 5:16 PM (GMT -7)   
I know this is properly a question for and the ostomy board at healingwell, but this forum is where I feel I know everyone- and as I increasingly stare diwn the surgery precipice, I was wondering what you perm ileo and jpouchers on the forum do, if anything, for probiotic therapy, eg to prevent / minimize the occurence of pouchitis or cuffitis, and/or insure against developing crohn's (since a certain percentage of even "100% confirmed UC" patients end up rediagnosed as crohn's years later, post colon, which means presumably they had crohn's colitis mimicking UC all along- one of my many pre-surgery fears). Does the probiotic strategy change a lot post colon- I would guess it would be more optimized towards the probiotic bacteria that populate the small gut, although the cuffitis issue (if a rectal cuff is not stripped) presumably could still require probiotic enemas say. Though I didnt do well on most worm therapies, it makes me winder also if perhaps hookworm therapy might be one way to try and prevent an eventual crohn's attack.

Another question- its said again and again that much of our immune system resides in the colon- does that mean our immunity is weakened without a colon, or is the colon immune system

basicallly there just to protect (unsuccessfully, to say the least, in
the case of active UC) the colon, i e largely irrelevant once the colon is gone? If its the latter, it seems to me a bit of an over compartmentalizing of the immune system as far as an explanation goes- not that this should or would in any way dissaude me from surgery for a colon that is a nonstop nuisance.

Post Edited (Probiotic) : 8/21/2012 6:19:46 PM (GMT-6)

Veteran Member

Date Joined Feb 2011
Total Posts : 4530
   Posted 8/21/2012 6:45 PM (GMT -7)   
I do not take probiotics. I know a lot of j pouchers do and many doctors recommend them. I'm in the mind set of if it's not broken don't fix it. I haven't had any issues at all with my j pouch ....knocking wood! I just try to eat right, excercise and I drink plenty of water. So far so good! If I was getting pouchitis, then I would probably look into taking them.

No, your immune system is not weakened by getting the colon removed. My immune system is stonger now than it was because I'm not sick with uc anymore and not on any drugs. My kids bring home every bug under the sun from school. I'm the only one in the house that never gets sick.

DX UC in 2005. Family history of UC.
Tried every drug-even Remicade-Tried diets-nothing worked-wanted my life back!
Step 1: J-pouch surgery (Laparoscopic restorative proctocolectomy w/ temporary diverting loop ileostomy) 6-25-10
Step 2: Take down surgery (Ileostomy reversal) 10/8/10
No more UC and no more drugs!! Very happy with my results of this surgery-got my life back! :)

Post Edited (ByeByeUC) : 8/21/2012 7:50:45 PM (GMT-6)

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