Posted 8/29/2012 7:37 AM (GMT -6)
Doctors don't really know what is going on. All anyone can do is guess, especially when the disease is different in everyone. However, I do want to point out a couple of things you may not really understand. UC can be caused by many different things, some of them being an imbalance of good vs bad gut bacteria in the gut.
There are many different kinds of antibiotics, all of which effect the balance of gut bacteria in different ways. Different kinds of antibiotics kill different kinds of bacteria. Some kill all different kinds, both the good and the bad. Some antibiotics kill more good bacteria than bad bacteria. Some kill more bad bacteria than good. There are occasions where prescribing the correct kind of antibiotic can actually help UC or even put it into remission. That's just in some people though and that's only if you can actually figure out which bacterias are causing your problem (about impossible).
I'm not sure you fully understand when you say your bacteria tests show clean. There are a small handful of very bad bacteria, such as C-Diff, that they are testing for in your tests. These bacteria cause some cases of UC. Your tests are showing that those small handful of very bad bacteria are not present in you, so your UC is not caused by them. But, there are literally thousands of different kinds of both bad and good bacteria in everyone's guts and an imbalance of this can be responsible for UC. In normal people the good bacterias usually keep the bad bacterias in check. The problem in UC'rs though is what is responsible for the imbalance of of these bacterias? Unfortunately, just increasing the good bacteria and decreasing the bad bacteria usually doesn't "cure" UC, although it can make it much better. If your UC is caused by an autoimmune reaction then your immune system may be trying to attack one of the bacterias in your gut, causing inflammation. In my case, I wholeheartedly believe that the Epstein Barr Virus is residing in my gut and my immune system is contstantly attacking that, causing inflammation (I have found documented medical evidence for this). With current medical knowledge, in may be impossible to kill the bacteria (or virus in my case) that is the culprit, assuming that you can even figure out which bacteria or virus is triggering the autoimmune resonse. In your case it is very possible that the bacteria causing your autoimmune reaction is a "good" bacteria or one of the bad bacterias that they didn't even test for. Maybe your condition isn't autoimmune related at all.
Some of the treatments for UC involve trying to stop or cut down on inflammation but this does not address the issue of what is actually causing the inflammation. If your UC is autoimmune just working on the inflammation alone may make your condition better but it will never cure you.
Most of the other treatments for UC revolve around suppressing the immune system in one way or another so that it does not attack your gut, causing inflammation. Unfortunately, most of these meds are not cures either because, if your condition really is autoimmune, then your condition will only improve as long as you are taking the medicine. When you try tapering back or stopping the meds, your system goes right back on the attack. Most all of these meds have serious side effects, both short term and long term.
You may very well be right that the answer to your condition involves something to do with bacteria. Trying to figure it out is the problem.
Asacol 400mgs 2 pills X 4; VSL#3 112.5mgs 2 pills X 4; Vitamin D 5000 ius 1 pill X 2; DGL 400mgs 1 pill X 3
Didn't do anything: Prescription - Glycopyrrolate; Natural - enteric peppermint oil, Boswellia, Pepto Bismol, Omega 3 fish oil, Beano, Lactaid
Discontinued: Slippery Elm - meds were just passing through, Immodium - making me feel constantly constipated in beginning and now have solid BMs