Hello again! Just updating my post. I spent the holiday weekend back in the hospital. Since it was a holiday weekend, I didn't get to see my set of docs, so I was left with the admitting hospitalist. Got the normal, iv fluids, which took a total of 9 sticks including one to a vein in my neck by the ER doctor. I have never in my life screamed so much, and I have delivered two children, had a total hysterectomy and complete reconstruction to my foot after being run over by a ride on lawnmower. So I know my fair share of pain.
Anyways, the ct came back normal despite my high level of belly pain, which I am glad for I guess. So, the hospitalist decided to add some sort of binding agent(don't remember the name) and sent me home on Sunday. Well here we are tues. and I am so constipated I can't see straight, which I know is a bad thing for c diff. So went to my gi and they were really pissed that i was put on this med, took me off it and called the hospital to complain about
the treating doc.
So, they said because I seem to be antibiotic resistant, that I would be a good candidate for fecal transplant. My local hospital does not do it so they are looking into it more me. Does anyone happen to live in Miami who has had it done?
We also are looking into if I will even be a candidate since I have an immune deficiency where I do not produce any IGA which is what helps fight infection in the mucus membranes of the body . I am scared that using someone's fluids may
open up a whole new set of problems for an immune deficient patient such as myself. Has anyone ever heard of immune compromised patients being accepted for FT?
I am so lost and lonely and find it hard to discuss this with anyone other than my husband. I am afraid of his family finding out about
this consideration, not to mention my friends. Which of course you all know how we quickly find out who your true friends are when there is chronic illness. I have so many plans for my family, a Disney trip soon for my kids, a ski trip we try to take every year, and over the last 6 months, I have been the cause of a lot of my family missing out on these fun family things. I do not want my kids growing up thinking I am just this sickly, frail person who can't ever do anything fun with them. My 5 yr old daughter just asked me the other day why I go to the bathroomso much. It just breaks my heart.
Please if anyone has info for FT in Miami or anywhere in Florida, please let me know. Desperate in MIA.
Post Edited (shannon1) : 9/4/2012 8:54:37 PM (GMT-6)