I was on transdermal LDN for quite a while and enjoyed an 18 month remission before starting to flare. GI put me on a 40mg pred taper starting 14 days ago. I am now down to 35mg and feeling better but not 100%. Still have some mucus and small amount of blood, occasional minor cramps and gas. Have 1 BM a day which is formed but soft. Have anal pressure when I awake which ends with BM. Urgency has improved.
Will I continue to see improvement while taking pred or is this as good as it gets. I was on pred once before starting at 20mg and all symptoms quickly resolved. Have asked GI for rectal meds several times but he says I don't need them. I don't understand why he refuses.
When I reach 20 mg of pred, is there any point in going back on LDN? Since I flared once while on it, does that mean that LDN is not working for me. I'd rather not take even a harmless med if it is not going to be helping me.
Currently on 35mg pred, 4 Apriso, hyoscyamine as needed, 6 metamucil capsules after supper. (Thinking of stopping the metamucil to see if that helps.) Also take calcium, multivit., vit.d and florastor.
Hope you'll share your thoughts and experiences with me. I beginning to feel as if I should not have started the pred. The only side effect seems to be extreme anxiety--no weight gain, or increased appetite -- yet. Thanks for your responses