Thanks for all the responses everyone.
Bananagirl - while the SCD is working for me, the reason I'd like to do this is so that I can hopefully go back to a normal diet. I have a 1 year old and 3 year old at home, and it is rather cumbersome to make separate meals for the rest of my family and me.
Also, the science of FT makes a lot of sense.
A quick overview of my thoughts on UC, etc...:
My sense of what is likely causing my disease is a bacterial dysbiosis brought on by repeated antibiotic use, disrupting the normal balance of bacteria in my system. There is no history in my family of GI problems - so the idea that I just suddenly developed an auto-immune disorder while in my mid-20s never made sense to me.
It seems far more likely that the problem is bacterial in nature. If antibiotics kill off a good portion of our intestinal fauna (and multiple studies have shown that both UC and CD patients typically have about
25% fewer strains of bacteria in their intestines than healthy people, supporting this), that can create room for a pathogenic strain to take over.
I would think that the strain that takes over in one person versus another could cause significant variation in presentation of the disease - and could be the reason for the great variance in symptoms and also what works for some of us.
Anyway - the idea that my immune system all of a sudden decided to start attacking my own colon, or "forgot" how to shut off (the two theories that seem to be pushed by many practicing GIs) just don't make sense. It seems far more plausible that our immune system is reacting to a pathogen (likely a bacteria) that has grown out of balance in our intestines.
When you get a stomach virus, your immune system triggers to try to flush it out (diarrhea, etc.). Bacteria though can physically adhere to the intestines, so aren't effectively flushed out through this process - thus the immune system stays on, and the continued inflamation leads to ulceration, etc. etc..
So, the goal should not
be to shut off our immune system (which is what Remicade, Humira, etc. do), but to instead re-establish a healthy intestinal fauna, removing the pathogen that our immune system is reacting to. The aim of the SCD is to starve off the overgrown bacteria by eliminating their food source (complex carbs). But, re-establishing a healthy fauna can take years with the diet alone, as you are reliant on gradually adding good bacteria back through diet (plus you aren't feeding intestinal bacteria while on the diet).
So, it seems like an approach of killing off invasive bacteria (either with antibiotics or IMO preferably with SCD) and then implanting a healthy intestinal fauna is a more thorough way of fixing the problem.
It may not work in everyone, likely for a variety of reasons. There can be differences in:
1. the protocol used,
2. how hard the invasive bacteria is to kill/displace (for example, the MAP bacteria suspected of causing most CD is very resilient),
3. whether active inflamation is preventing the new bacteria from establishing themselves,
4. the quality of the donor material (both the quality of the donor's intestinal fauna, and how well it was preserved and implanted),
With UC and CD, it also seems reasonable that it could take repeated transplants to finish the process since overgrown bacteria could have established themselves fairly deep in the tissue. So, I am expecting that I will likely be doing transplants for quite a while (hopefully 4 days a week for a few weeks, then 2 days a week for a couple months, then 1 day a week, then every other week, etc.).
My current plan is to start the transplants next week, and stay on the SCD for until a week or two after the Remicade has worn off (which won't be long from now). If I am not having any problems while on the SCD and doing the transplants, I will then gradually add in some complex carbs to help feed the new bacteria - probably starting with some rice.
doesn't hurt to try it! i did the 10 days of flagyl before i did my 8 FT's but i'm not sure if that mattered or not. it was still a very difficult experience for me. it requires a lot of preparation, cleaning, and help. it is 100% a two person job. if your wife is willing to help, then by all means, give it a shot. i didn't notice any positive benefits from doing it but like any procedure/medication, it helps some people and doesn't help others.
Did you have your donor tested to make sure you weren't introducing a new pathogen into your system? I remember reading a thread where you were talking about
your process, but I can't find it at the moment.
Also, were you flairing at the time? From the research, it appears that active inflamation makes it much harder for the new bacteria to implant themselves.