I did a fecal transplant a couple of weeks ago and I had mixed results. I kept it in for 24 hours, then I had really horrible diarrhea with nausea and pain, the next day no poop, and the day after that I had a totally normal stool with no pain, which I hadn't had in months. But then my diarrhea came back and I started to have a lot of colon pain which I hadn't had in a long time, and that kind of scared me. My doctor wants me to try four more FT's spaced over two weeks and I'm nervous about it because of the colon pain, but I think I'm going to go ahead with it. I also have donor issues (as in my donor is the son of an acquaintance and they haven't been totally reliable) so I'm not able to fast or really prepare for the procedure.
The colon pain is interesting. It seems like there could be somewhat of a battle going on in our intestines due to the transplant, as the implanted bacteria try to displace the resident bacteria.
Your diarrhea coming back isn't all that surprising - it seems like with UC and CD, it takes repetitive transplants over time to fully "cure" the problem, probably because of a combination of difficulty with displacing the resident bacteria (especially since some types of invasive bacteria can implant spores in the intestinal walls, allowing them to come back, and also some build a strong biofilm to protect themselves and keep other bacteria from taking root).
I'm expecting to keep doing transplants for probably 6-10 weeks.
Two things I wanted to mention. I know people have been talking about the purpose of SCD being to re-establish healthy bacteria in the gut, but it also has the purpose of giving the digestive system a rest from disaccharides so that the intestinal villi can heal and regrow. I think this may take longer than a few weeks and for me is the reason that I would continue with it even if I did get my bacteria rebalanced.
That's a good point. I think that how much healing is needed depends on how long you have had active problems, as continual mucus production and inflamation damage the villi. In my case, the Remicade has kept the inflammation and mucus production at bay for the past 8 years. I don't know if that would have helped the villi heal some or not.
With the diet, I'm going to proceed very cautiously as far as introducing SCD illegals.
My doctor also suggested trying to get some human breast milk to drink after the FT as it has all the long chain sugars that are specifically for feeding our gut bacteria. Anyone ever tried this or thought of it? My doc said he'd give me a prescription to get some milk from the local milk bank, but I'd prefer to find someone I know to donate as the milk bank flash pasteurizes their milk.
Weird. I wouldn't think that would be necessary, as I would think any long-chain sugar would be able to feed the bacteria.
My wife recently stopped nursing our infant anyway. ;)
It is really encouraging to read this thread today. I am feeling pretty discouraged and hopeless about my health right now, but reading some of the success stories here is giving me hope.
Don't give up. Based on the studies I've read, it can take weeks or even months for implanted intestinal fauna to take over, and for the intestine to be fully healed. In the original Borody study, all of the UC patients had complete remission by 4 months after the transplants. Some had immediate results, but not all.