Fecal Transplant and Diet (SCD currently)

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Briggs
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Date Joined Oct 2012
Total Posts : 66
   Posted 11/30/2012 10:11 AM (GMT -7)   
kookoo said...
Good stuff Dr Briggs. I think you could do worse than beans and rice. I have been doing fairly intensive biofilm therapy with Candex and Kirkmans biofilm defence as I cant get the Claire labs one. I missed my weekend transplant as my daughter was away and have pretty much gone downhill a bit. Stopped taking my digestive enzymes for a day which wasnt a good idea as my GERD came back (although it hadn't completely gone was much better). I am hoping it is a bit of a herxheimer effect of the biofilm breaking up I can see it floating on the toilet so it must be working? I have started taking some astragalus to try to boost my immune system to take care of the bacteria being set free.My daughter came home and I did a small transpant last night and picked up a bit this afternoon. My black seed oil is a godsend...does anyone know what will happen with the bacteria will it just be taken care of by the immune system? Upanashad I have left the poop for the afternoon but not overnight I have read it is OK for 24 hrs but I guess fresh is best!! JOY! lol


Wow, you're taking a lot of different thing. :) The only supplement I'm taking now is the S. Boulardi (unless you count fish oil).

How long have you been taking the stuff for biofilm breakup? I stopped that once things seemed to be going pretty good.

Briggs
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Date Joined Oct 2012
Total Posts : 66
   Posted 11/30/2012 10:20 AM (GMT -7)   
solomani said...
What heartening news. As a doctor any views on what maybe happening with someone with ulcerative proctitis as opposed to UC and CD? I have had UP for 21 years but its well controlled by enemas.

To clarify first - I'm a physicist, not a medical doctor. I've done some medical physics research, but not related to gastrointestinal diseases.


That said - my understanding is that UP is really just UC that is isolated to the rectum. In my view, that would probably mean that that is where the bacterial dysbiosis is (i.e. that is where a pathogenic bacteria has overgrown, and your immune system is attacking them there).

The closer the infection is to the rectum, the more effective fecal transplants by enema should be, since you can pretty thoroughly flood the area with new bacteria. I think it is valuable though to first try to kill the "bad" bacteria off, either with antibiotics or preferably with the specific carbohydrate diet. Then use enzymes to break up any biofilm they built, and then do the transplants to rep-establish a healthy fauna.

solomani said...
I am tempted to follow the same pattern as you once I hit my 12 week mark with SCD (at 6w). I would hazard to guess for UP I just need to get the FMT into the rectum and not any deeper. But no harm in letting it go deeper.

I think it's very worthwhile to do it. As you said, you may not need to get it up as far (the headstand gymnastics are fun though!).

I'd suggest taking S. Boulardi if you aren't already, and then starting that Interfase supplement to eat up biofilm. FOr the Interfase, in my case it seemed to work best to take it in the middle of the night (I generally wake up once or twice during the night to pee, so that was a good time to take it), so it doesn't just end up digesting food.

[quote]Also, any chance of a detailed process of what you did at some point - items used, regime of drugs (if any) etc?

Yup, I'll write it up next week. Need to get back to work now. :)

If you read through this thread, I've talked about the process, but spread out in many posts. I'll put it all together in one condensed post next week, so it's easier to follow.

Edbar
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Date Joined Jan 2012
Total Posts : 292
   Posted 11/30/2012 12:05 PM (GMT -7)   
I just posted my update on the other FT thread but I'll repeat it here.
I have been doing FT for almost exactly a year now for my 9 year old son. We started early Dec 2011 after he had been hospitalised and on vancomycin and was taking pred. He was med free from Feb 2012 to Sept 2012 when he began flaring again. We caught it early and started him on vanco and pred again so that it didn't get out of hand. When he flared in Sept we were doing FT every 3 weeks. Perhaps if we had been doing weekly FTs then maybe he wouldn't have flared but that's just my speculation; or perhaps he has biofilms and the infection had time to take hold. He is now off all meds again and we are managing symptoms with FT only again.
Dr Briggs, I think your theory about the biofilms is worth considering. Even Dr Borody mentioned biofilms when I spoke with him in July although I didn't quite appreciate what he was saying at the time but since reading about your story it makes more sense now. I haven't done the biofilm treatment for our son although I do have the Interfase just in case we decide to try. He is doing quite well right now so I'm a little nervous to rock the boat in any way.
Solomani, I agree with Dr Briggs that FT could possibly help but I would still try to get the enema further up the colon just in case there is some flora inbalance going on there also.

solomani
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Date Joined Nov 2012
Total Posts : 38
   Posted 11/30/2012 10:52 PM (GMT -7)   
Dr Briggs said...
solomani said...
What heartening news. As a doctor any views on what maybe happening with someone with ulcerative proctitis as opposed to UC and CD? I have had UP for 21 years but its well controlled by enemas.

To clarify first - I'm a physicist, not a medical doctor. I've done some medical physics research, but not related to gastrointestinal diseases.


I was appealing more to the scientist than a medical doctor, so well answered :)

I have read the thread and I have put it together but would be nice to see a write up with any hints etc. Any reason why you don't use your children as donors? It would seem easier to "harvest" than from an adult.

Dr Briggs said...
I'd suggest taking S. Boulardi if you aren't already, and then starting that Interfase supplement to eat up biofilm. FOr the Interfase, in my case it seemed to work best to take it in the middle of the night (I generally wake up once or twice during the night to pee, so that was a good time to take it), so it doesn't just end up digesting food.


I am gathering my supplies as we speak. Mostly via Amazon as I live in HK and just easier. I guess Boulardii is a probiotic:
http://www.amazon.com/Ortho-Molecular-Products-Saccharomyces-Boulardii/dp/B002HSK5PS

Any specific brand or it doesn't matter so much.

Briggs
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Date Joined Oct 2012
Total Posts : 66
   Posted 12/6/2012 8:34 AM (GMT -7)   
Edbar said...
I just posted my update on the other FT thread but I'll repeat it here.
<span style="LINE-HEIGHT: 115%; FONT-FAMILY: 'Verdana','sans-serif'; FONT-SIZE: 10pt; mso-fareast-font-family: 'Times New Roman'; mso-bidi-font-family: 'Times New Roman'; mso-ansi-language: EN-CA; mso-fareast-language: EN-CA; mso-bidi-language: AR-SA">I have been doing FT for almost exactly a year now for my 9 year old son. We started early Dec 2011 after he had been hospitalised and on vancomycin and was taking pred. He was med free from Feb 2012 to Sept 2012 when he began flaring again. We caught it early and started him on vanco and pred again so that it didn't get out of hand. When he flared in Sept we were doing FT every 3 weeks. Perhaps if we had been doing weekly FTs then maybe he wouldn't have flared but that's just my speculation; or perhaps he has biofilms and the infection had time to take hold. He is now off all meds again and we are managing symptoms with FT only again.

<span style="LINE-HEIGHT: 115%; FONT-FAMILY: 'Verdana','sans-serif'; FONT-SIZE: 10pt; mso-fareast-font-family: 'Times New Roman'; mso-bidi-font-family: 'Times New Roman'; mso-ansi-language: EN-CA; mso-fareast-language: EN-CA; mso-bidi-language: AR-SA">Dr Briggs, I think your theory about the biofilms is worth considering. Even Dr Borody mentioned biofilms when I spoke with him in July although I didn't quite appreciate what he was saying at the time but since reading about your story it makes more sense now. I haven't done the biofilm treatment for our son although I do have the Interfase just in case we decide to try. He is doing quite well right now so I'm a little nervous to rock the boat in any way.


I definitely understand your "don't rock the boat" perspective.

Honestly, I can't say that the Interfase definitely made a difference in my case - but based on my understanding of things, I can definitely see how it could help. If a pathogenic bacteria had build up a strong biofilm in my intestines, that could interfere with the ability of the transplanted bacteria to "take root" (overtake any remaining pathogenic bacteria, and establish themselves within my colon).

If the transplanted bacteria aren't able to "take root", that could be a factor in the benefits of the transplants wearing off over time, and needing to do them periodically to keep putting more of the healthy fauna in there.

So, I can see a reason why the enzymes could help - but I can't say for sure that in my case they were a significant factor in how successful the process has been for me. And of course I don't yet know how I will be 6 months from now, a year from now, 5 years from now, etc..

To me, the main potential benefit of trying the enzyme in your case is that based on my understanding of how this all works, it could make it more likely that you could eventually stop needing to do the transplants, if it helps the transplanted bacteria take root.


Of course, there could be other issues complicating things in your son's case, such as the bacterial dysbiosis may be considerably further up than in my case, etc..

Best of luck to you.

Briggs
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Date Joined Oct 2012
Total Posts : 66
   Posted 12/6/2012 8:42 AM (GMT -7)   
solomani said...

I have read the thread and I have put it together but would be nice to see a write up with any hints etc. Any reason why you don't use your children as donors? It would seem easier to "harvest" than from an adult.

Sorry for the late response, it's been a busy week.

The main reason is that my wife is more regular than our kids, in the sense that she generally goes in the morning - which is a convenient time for me to do the transplants on the weekend (right after she goes). Our kids are more random as far as when they go, so it makes it a little harder to plan around.

Also, our 3 year old is potty-trained, and I didn't really want to have to go through the process of explaining to her why I want to catch her poop on the weekends, but during the week she could just poop in the regular toilet. :)

solomani said...

I am gathering my supplies as we speak. Mostly via Amazon as I live in HK and just easier. I guess Boulardii is a probiotic:
http://www.amazon.com/Ortho-Molecular-Products-Saccharomyces-Boulardii/dp/B002HSK5PS

Any specific brand or it doesn't matter so much.

It shouldn't matter, as long as it does actually contain S. Boulardi. I think it needs to be kept refrigerated, although I don't know how quickly it might die off if it isn't. Some of the SCD supply companies sell it, and might be better about using proper storage and shipment - but I don't know for sure.

It is a probiotic that has been shown to be helpful in displacing some pathogenic bacteria and yeasts.

A couple of sites discussing this process that I found helpful as I was prepping:
http://www.naturaldigestivehealing.com/blog/2011/02/06/bacteriotherapy-summary-post/
(note - he used enema bottles, whereas I just used these bags: http://www.amazon.com/gp/product/B0016LG9KM?ie=UTF8&tag=digesheali-20&linkCode=as2&camp=1789&creative=390957&creativeASIN=B0016LG9KM
The bags worked great - you want to put some duct tape over the opening at the top though after "filling it", so it doesn't squirt back out when you squeeze the bag)

http://perfecthealthdiet.com/2010/07/bowel-disease-part-iv-restoring-healthful-gut-flora/

Post Edited (Dr Briggs) : 12/6/2012 8:50:56 AM (GMT-7)


Briggs
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   Posted 12/6/2012 8:47 AM (GMT -7)   
Update: Things are going good still. I got a little too greedy on Saturday and tried eating some regular pizza. I developed gluten intolerance about 18 months ago (at the same time as I developed appendicitis and had my appendix removed), and I'm hopeful that this process will eventually let me eat wheat again - but my villi apparently aren't ready for it. I had some significant abdominal pain from gas (same as before I stopped eating wheat 18 months ago), and one instance of diarrhea. The one instance of diarrhea though could have also been a stomach bug that has been going around, and my wife had a day or two earlier.

But, after that I've been fine. I had an eggs benedict at a restaurant with a gluten-free muffin, and that seemed to sit fine. I don't know what they use in their gluten-free muffins, but I didn't have any problems with it.

I didn't do any transplants this weekend - so I now haven't done any for I think three weekends (with two little kids at home, I have no sense of time anymore). I'm optimistic now that I may be done with them.

zucchini
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Date Joined Jun 2010
Total Posts : 389
   Posted 12/6/2012 10:36 AM (GMT -7)   
That's great, I hope things continue well for you. (and watch out for that gluten. ugh!)
Ulcerative Colitis diagnosed April 2010 at age 37
Female, mom of 2
Canasa made things worse. Hydrocortisone made no difference.
Tried SCD ... 6 mos in 2010. GAPS diet 4 mos in 2011. Not sure if these helped.
Remission for 16 mos gluten-free, mostly grain-free, semi-paleo, alternative healing routes.
Current status - Flare. Rats! Considering FT

solomani
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Date Joined Nov 2012
Total Posts : 38
   Posted 12/6/2012 11:25 PM (GMT -7)   
Brilliant. Thanks Doctor. They were a great read. Keep us all in the loop.

kookoo
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Date Joined Nov 2012
Total Posts : 12
   Posted 12/7/2012 12:36 AM (GMT -7)   
Dr Briggs you are very bad and should not eat gluten... There are lots of different enzymes to take. I currently take Source Naturals daily essential enzymes which helps my body to absorb nutrients until I get completely better. I used to take Betaine HCL which helped alot. I have used serrapeptase but I don't believe that this helps with biofilm however it can munch up extra mucous and other stuff which accumulates when one has poor digestion. I have just read about an enzyme called Lumbrikonase and as I have done the poo thing I now figure it is fine to eat earthworms (which is where this comes from) lol. I have used Candex which breaks down fungus walls of candida cells which can be helpful. When it comes to biofilm I thought that the Kirkmans biofilm defence worked well (Iherb) as It is difficult to get the Klaire labs in Australia. I have a theory regarding biofilm. Apparently bacteria can hide behind metal in the body and when biofilm forms it uses metal to make its structure. This is particularly relevant if you have had mercury fillings in your head at any time (which you have of course had removed). If you go on alot of antibiotics or other prescription drugs the biofilm hides the bacteria. If you try to chelate metal (using EDTA or cilantro) or kill parasites using a herbal preparation it wont work as they are in and under the biofilm. Therefore I believe that it is necessary to have a three pronged approach in order to eliminate all three and stop the biofilm from reoccuring . I don't know what others think about this but it makes sense to me and I am going to try it with the worm enzyme yumyum Us F.T 'ers are fearless haha

5x FT Still have some GERD and poor digestion. Paleo-style diet.

garylouisville
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Date Joined Aug 2012
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   Posted 12/7/2012 5:43 AM (GMT -7)   
Dr. Briggs: I have been doing a lot of research on histamine intolerance lately. It's symptoms mimmick gluten intolerance and Candida problems closely but it is different. I believe some people who think they are gluten intolerant are actually histamine inolerant instead and are eliminating some gluten type foods for no reason. I discovered this by trying to figure out why I had such a problem when eating Pizza, cheddar cheese, and the probiotic Florastor - which is a yeast. All three only had one thing in common- all were high in histamine. In many UC patients it has been proven that we are low on the digestive enzyme diamine oxidase, which controls histamine. Certain foods, such as pizza, are high in histamines. If you ingest more histamine than you have diamine oxidase, you effectively have an overdose of histamine, causing problems. I just recently started taking the diamine oxidase enzyme before meals and put it to the test last night, eating a bunch of the same pizza that caused severe frequency, bleeding, and diarrhea. I not only didn't have any problems but I had a better night than my average night. The experiment had miraculous results. The next test is going to be cheddar cheese, which causes me problems 100% of the time.
Asacol 400mgs 2 pillsX4; VSL#3 112.5mgs 1 pillX4; DGL 400mgs 2 pillsX3; Monolaurin 300mgs 2 pillsX3; Vitamin D 5000 ius 1 pillX2, Thorne SF722 5pillsX3, garlic 1 pills X 4, B6 1/day, Histame at meals

Discont: Robinul; Natural - peppermint oil, Inflaguard (Boswellia), Pepto Bismol, Omega 3 fish oil, Imodium, Beano, Zymactive, Renew Life Probiotic 80 billion, Florastor, Slippery Elm

Briggs
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Date Joined Oct 2012
Total Posts : 66
   Posted 12/10/2012 7:56 AM (GMT -7)   
garylouisville said...
Dr. Briggs: I have been doing a lot of research on histamine intolerance lately. It's symptoms mimmick gluten intolerance and Candida problems closely but it is different. I believe some people who think they are gluten intolerant are actually histamine inolerant instead and are eliminating some gluten type foods for no reason. I discovered this by trying to figure out why I had such a problem when eating Pizza, cheddar cheese, and the probiotic Florastor - which is a yeast. All three only had one thing in common- all were high in histamine. In many UC patients it has been proven that we are low on the digestive enzyme diamine oxidase, which controls histamine. Certain foods, such as pizza, are high in histamines. If you ingest more histamine than you have diamine oxidase, you effectively have an overdose of histamine, causing problems. I just recently started taking the diamine oxidase enzyme before meals and put it to the test last night, eating a bunch of the same pizza that caused severe frequency, bleeding, and diarrhea. I not only didn't have any problems but I had a better night than my average night. The experiment had miraculous results. The next test is going to be cheddar cheese, which causes me problems 100% of the time.


Gary,
That's very interesting, and you might be onto something - at least for some people with what seems to be gluten intolerance. In my case, I have no problem at all with cheddar cheese (I eat a fair amount of it), so I would think that that would rule this out for me.

What I'm still very curious about in my case is that I developed the gluten intolerance at the same time as I had acute appendicitis, and had my appendix removed. I don't know if it was cooincidence, or if there was a connection. I think the gluten issue started first, with the severe abdominal pain presenting similar to appendicitis - but only after eating (and most things I ate had wheat in them). After a couple weeks though, the abdominal pain continued to persist long after I ate, and became sharper and different - because I had developed appendicitis.

Briggs
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Date Joined Oct 2012
Total Posts : 66
   Posted 12/10/2012 7:59 AM (GMT -7)   
Update:

Things are going great. I haven't done a transplant for I think 4 weeks now, but I continue to be fine. In fact, I had a bean burrito on Saturday (with regular refried pinto beans, a brown rice tortilla, shredded cheese, etc. - all SCD illegals), and made some nachoes on Sunday (using chips that are a mix of rice and corn flour), and was perfectly fine. Woohoo!

I'll be trying some gluten-free pad thai today. Next weekend I may try some potatoes. Yum!

Briggs
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Date Joined Oct 2012
Total Posts : 66
   Posted 12/12/2012 2:04 PM (GMT -7)   
Ok, I've been telling people I'd post a condensed summary of what I did, and I figure I have some time now while my students are taking their final exam (muahahahaahha!!).

Step 1: I started on the Specific Carbohydrate Diet (SCD) about 18 weeks ago, not intending to do fecal transplants (FT), but I think if you want to cure your IBD, this is a good place to start. It can help with getting the inflamation under control, and starving off the bacterial dysbiosis causing the problem. The SCD though is IMO incomplete, since it takes a long time to repopulate the intestines with a healthy intestinal fauna. But, it is a great place to start.

I was on Remicade when I first started, but it wore off a couple months ago. I'm not sure if it played any role in the process working for me - it may have helped though by helping keep inflammation at bay while I did the transplants. But, I did the transplants about 10 weeks after starting the SCD, and the SCD seemed to do a lot more to normalize my bowels than Remicade alone did. So, I think that most people might be able to get the inflamation under control purely with the SCD.

Getting the inflammation under control is important, as bacteria apparently have more trouble attaching to our intestines when we have active inflammation.

Step 2: Destroy biofilm that pathogenic bacteria might have made to protect themselves, and keep other bacteria from moving in. I did this with the Interfase enzyme supplement by Klaire labs, which can be bought on Amazon. I took them primarily at night (when waking up in the middle of the night), since you want to take them far apart from food (timewise), since otherwise the enzymes will be used for food digestion. you want them to be used for digesting biofilm.

The enzymes gave me some serious gas, especially if taking 2 or more at a time, and if I went back to sleep afterwards (since I often sleep on my back, which makes it hard for gas to escape, so it builds up). Sometimes they also gave me a frothy diarrhea, which I think was the digested biofilm coming out.

When I started the transplants, I found that taking two of these pills a couple hours before I did the transplant (in the morning) was also a good way to "clean out" my system. The first time I did a transplant, I used miralax to clean things out - but the enzymes worked pretty good too.

Step 3: Start transplants. For UC and CD, it appears to be better to do one or two transplants a week for 4-10 weeks, rather than doing transplants a few days in a row and then stopping. Some pathogenic bacteria can lay spores in our intestines, and regrow after an initial transplant (or course of antibiotics) - so you want them to try to regrow, then hit them again, then wait and hit them again, etc..

I used enema bags, and found them to work quite well.

I made my own saline solution, mixing 4 slightly heaping teaspoons of non-iodized table salt into a gallon of distilled water. If you use straight water (non-saline), the bacteria can die from osmotic shock (salt inside the bacteria's cells can be pulled out by osmosis if you put them in non-saline water).

I did transplants on Saturday and Sunday morning of week 1, one transplant on week 2, two transplants (Sat and Sun) of week 3, and one again on week 4 (just Sat). Doing two versus one was really more of just a scheduling issue. I used my wife as a donor, and if she didn't need to go at a convenient time, then that sometimes made me unable to do a transplant on one of the weekend days. My intent had been to do transplants on each Sat and Sunday for up to 6 weeks - but I couldn't always do them each day, and after 4 weeks I seemed well enough that I stopped.

My procedure for the transplants themselves:

1. Wife collects sample (the insert for a toddler's potty seat works well, and conveniently we have one at home).

2. I immediately plop sample in a blender that I don't intend to ever use again. :)

3. Immediately pour enough saline in to fully immerse the "sample", so it is not exposed to air. Then add a little more.

4. Blend in brief pulses. You don't want to keep it blending constantly, as the whipping action can introduce air which can kill the anaerobic bacteria. That's why you want to go quickly from collection to covering in saline, and then blending with as little aeration as possible. I probably blended for a total of 10 seconds, but spread out in 10 brief 1 second pulses. It should be a very liquidy consistency.

5. Strain sample through a metal mesh kitchen strainer, and into the enema bag. This is the messiest part. Wear disposable gloves. I also recommend putting a little Vick's vapor rub under your nose - the smell of that will help overload your sense of smell.
The metal strainer *will* clog (or perhaps my wife just eats sand and doesn't tell me). I had a plastic bag handy for dumping the captured particulate into. I would pour from the blender until the strainer filled up, and wait for ~30 seconds to a minute to let the liquid get through, and then dump the captured stuff into the bag. Sometimes it helps to smack the strainer on a surface inside the bag (whatever the bag is resting on) to get the particulate out.

Repeat that until you have strained it all into the enema bag. This usually ended up putting about 2.5-3 cups of the poop cocktail into the enema bag.

Very important if using bags: fully seal the top of the bag with duct tape after you have filled the bag - you don't want it squirting back out when you squeeze the bag!

6. Take off disposable gloves, and put clean ones on. Bring the filled enema bag with you to the bathroom.

7. Put a few blobs of vaseline on some toilet paper (you will need them later). Make sure you have paper towels handy.

8. Remove the tip from the enema bag - the end should already be lubricated. Start squeezing the bag to start pushing the slurry into the tube, forcing the air out (you don't really want to fill your intestines with a bunch of air - so get it out of the tube). When you have the tube mostly filled with the poop slushy, you are ready to go.

9. Get on all fours, with your butt up in the air. Insert the end of the tube, and start squeezing the bag. You will probably be able to tell that poop-flavored squishy is going in either by sensation, or by seeing particles moving through the tube. Hopefully the filtering got out any particles big enough to clog the tube (otherwise it is a HUGE pain).

10. You will get to a point where you feel "full", like you can't get any more in. At this point, I would remove the tube, get on my back, and do a shoulder-stand (use a wall to help). The point of this is to help the transplanted smoothy work its way further up the colon. As I did the shoulder stand, I would then lean some to the left (since it should first go over to the left side of my torso, following my colon), and then over to the right. Then I would gradually lean over to the right until I could lay on my right side - to get the stuff to work up my colon and then down the right side. Repeat this process again.

11. After doing that a couple times, you shouldn't feel "full" in the colon anymore, so it is time to start squirting more in there. You need to lube the tip of the tube though first - this is where the little blobs of vaseline from step 7 come in. Rub the tip of the tube around in those blobs to get it nice and lubed. Then get back on all 4s, and start squirting more up there. When you get full, remove, and do some more yoga.

I generally repeated this process a few times, going through 2-4 iterations of squirting and stretching. Doing that, I was able to get in between 2 and 3 cups each time - which probably did a pretty thorough job of coating my colon.

You don't want to overfill yourself to the point that you won't be able to retain the enema. Ideally, you would at this point lay down for at least 15 minutes or so, until you are confident that you can stand up without it coming back out. With 2 little kids at home, I often didn't take that time. Instead, if I started to feel like it wanted to come back out, I would do another inversion (shoulder stand) or just lay down, until the sensation went away.

Like this, I was able to retain the enemas for between 8 and 24 hours generally. That is important IMO.

Oh - and have fun cleaning up. :) Fortunately, I put a spray hose on our toilet a year or two ago, in case we used non-disposable diapers (we didn't stick with that for long). I also had a 5 gallon bucket with a hole cut in the bottom, which I could put on top of the toilet, and rinse all my supplies out in (blender parts and metal strainer). Then I would clean them with a sponge (dedicated for just this).

Hm, I wonder if any of my students will see this. :)

I'm personally not embarassed about posting about it - and even if I did have any mild embarassment, I'm willing to deal with that in case this helps anybody else. After 12 years of UC (5 completely uncontrolled, 7 moderately controlled by Remicade shutting off my immune system), I now feel like my bacterial problem is completely cured, and my villi are starting to heal.

That is a great feeling, that I hope others can experience also.

Briggs
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Date Joined Oct 2012
Total Posts : 66
   Posted 12/12/2012 2:14 PM (GMT -7)   
Oh, I forgot to give an update - I got a little bit carried away yesterday with eating complex carbs - I had some more pad thai for brunch, then some nachoes for lunch, then some more pad thai a couple hours later (I eat 5-6 meals a day). That gave me a pretty loose stool - but I'm back to normal today.

To me, this verifies that the bacterial problem is resolved - I don't develop any recurring problems from eating foods I don't digest (which would feed a pathogenic bacteria if present), instead I just have one loose stool. My villi seem to be healing - the only food that really seems to be problematic still is gluten. But, if I eat too much complex-carb containing stuff (such as three meals in a row), then that can give me a loose stool.

NomasUC
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Date Joined Oct 2012
Total Posts : 65
   Posted 12/12/2012 3:44 PM (GMT -7)   
Thank you so much for your very detailed and helpful information. I am sorry if you have posted about this already but I have not read all of your posts. What medications to treat IBD were you on right before the FT? Are you now off all medications for IBD? if yes, How did you come off of them? cold turkey? taper? Thank you again and I hope you continue to stay well and to share your experience with us all fellow IBDers.

michella
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Date Joined Feb 2005
Total Posts : 31
   Posted 12/12/2012 4:02 PM (GMT -7)   
Dr. Briggs,
I have UC, and have been trying many alternative therapies for 5 years now. (including a trip to Peru and a 10 day Ayahuasca dieta with a Shipibo Curandaro).
I have just completed a 10 day treatment of FT here at home, using my sister as a donor. She went through the full barrage of tests, (with the cooperation of her doctor). I was flaring when I began this procedure. I went on a week of flagyl, and, despite being on a constant SCD for the last 5 years, went on an even more aggressive zero carb diet for a week pre FT.(No veggies, fruit, nuts) I took N-acetll cysteine to clear bio film for a week pre procedure. I did not do any chemical flushing, but instead gave myself a saline enema every morning pre infusion for all of the 10 days. I lay slightly tilted head down for 4-6 hours per infusion, turning onto both left and right sides of my body. I reintroduced some carbs for the week during the procedure- (manna bread) to attempt to feed the "new flora". For the first 2 weeks following the procedure, I noticed an improvement. I stopped doing nightly cortifoam enemas, but continued with asacol @4x?day.
Now, on week 3, I am noticing the return of blood and diarrhea.

After reading your comments, I am understanding what I might have done to ensure greater success. The ideas you expressed re: biofilm make a lot of sense to me. I think I should have been more aggressive with this...spent more time prepping. Also, the idea of reintroducing carbs to feed the new flora when you aren't sure the "bad guys" have been starved out yet, seems like a bad one. Wishing I hadn't done that now.

I will try this again at some point - when I'm not in full flare - with a different donor, (who will provide the carbs necessary to feed the new flora through his own diet) and spend much more prep time to eradicate bio film, if possible.

Even though it hasn't worked well for me, I haven't given up. After reading what you have written here, I think proper prep is EVERYTHING with this procedure. It makes sense that you have to do everything humanly possible to create the perfect "nest" for the new flora.

All that said, the thing I did have great success with was the implementation of the procedure itself. I used disposable bags, and a special tip which my doctor suggested, which I reused. It has more holes in it, (5) and is slightly thicker, so there was no clogging problem. I turned my bathroom into my "lab". I placed my blender directly below the exhaust fan when blending, and kept incense burning...very little exposure time between the opening of the blender and the transfer into the enema bag....(Handy tip:If you keep the tube to the tip full of water when you fill the bag with your fecal solution, if there is any dripping pre insertion, it will only be water...a good thing.) If you are organized, have everything you need placed within easy reach, there is nothing messy about this at all. That said, I can't imagine doing this with an enema bottle or bag that wasn't disposable. Then there would definitely be both smell and mess. Also imperative, a compassionate helper.

The hardest part of the whole procedure for me was the time lying around everyday...(I can't imagine trying to do this if I had to work outside of my home) and the rectal irritation. Otherwise, it was pretty smooth sailing. I only wish now that I'd spent more time prepping. I plan to see a naturopath to help me with the biofilm issue.

As far as I'm concerned, this is the only thing that has made any sense to me as a possible cure. Western medicine and it's "mask the symptom" attitude does nothing for me. The last thing I want to do is tamper with an immune system which, until now, has served me very well for the last 56 years.

Thanks for your info. I'll keep watching your posts to see how it works for you. Wishing you the best of luck.

curl3d
Regular Member


Date Joined Feb 2012
Total Posts : 382
   Posted 12/13/2012 2:23 AM (GMT -7)   
Great summary Dr. Briggs! I think you have perfected the procedure further!
Status: In remission since beginning of April 2012
Diet: No gluten, no starches and avoiding eating much sugar.
Medicine: Asacol 4x100 daily
FT: Performed Fecal Bacteriotherapy at home using my wife as donor starting the 29th of February for 27 days. Please see tinyurl.com/bw5fn8g for the procedure I used

Briggs
Regular Member


Date Joined Oct 2012
Total Posts : 66
   Posted 12/13/2012 12:50 PM (GMT -7)   
NomasUC said...
Thank you so much for your very detailed and helpful information. I am sorry if you have posted about this already but I have not read all of your posts. What medications to treat IBD were you on right before the FT? Are you now off all medications for IBD? if yes, How did you come off of them? cold turkey? taper? Thank you again and I hope you continue to stay well and to share your experience with us all fellow IBDers.


The only medication I was on was Remicade, which I am now off. Prednisone and sulfasalazine didn't help me, if anything made things worse. I went on Remicade 7 years ago, getting it every ~11 weeks (if I went a day late, I'd start getting colitis symptoms very quickly - mucus in stool, blood, etc.). My last infusion was over 18 weeks ago, when I started the SCD. There was probably still some Remicade in my system when I started the FTs, but it is long-since out of me.

With Remicade you don't taper. If you're on prednisone, that would need to be tapered.

Briggs
Regular Member


Date Joined Oct 2012
Total Posts : 66
   Posted 12/13/2012 12:54 PM (GMT -7)   
michella said...
Dr. Briggs,
I have UC, and have been trying many alternative therapies for 5 years now. (including a trip to Peru and a 10 day Ayahuasca dieta with a Shipibo Curandaro).
I have just completed a 10 day treatment of FT here at home, using my sister as a donor. She went through the full barrage of tests, (with the cooperation of her doctor). I was flaring when I began this procedure. I went on a week of flagyl, and, despite being on a constant SCD for the last 5 years, went on an even more aggressive zero carb diet for a week pre FT.(No veggies, fruit, nuts) I took N-acetll cysteine to clear bio film for a week pre procedure. I did not do any chemical flushing, but instead gave myself a saline enema every morning pre infusion for all of the 10 days. I lay slightly tilted head down for 4-6 hours per infusion, turning onto both left and right sides of my body. I reintroduced some carbs for the week during the procedure- (manna bread) to attempt to feed the "new flora". For the first 2 weeks following the procedure, I noticed an improvement. I stopped doing nightly cortifoam enemas, but continued with asacol @4x?day.
Now, on week 3, I am noticing the return of blood and diarrhea.

After reading your comments, I am understanding what I might have done to ensure greater success. The ideas you expressed re: biofilm make a lot of sense to me. I think I should have been more aggressive with this...spent more time prepping. Also, the idea of reintroducing carbs to feed the new flora when you aren't sure the "bad guys" have been starved out yet, seems like a bad one. Wishing I hadn't done that now.

I will try this again at some point - when I'm not in full flare - with a different donor, (who will provide the carbs necessary to feed the new flora through his own diet) and spend much more prep time to eradicate bio film, if possible.

Even though it hasn't worked well for me, I haven't given up. After reading what you have written here, I think proper prep is EVERYTHING with this procedure. It makes sense that you have to do everything humanly possible to create the perfect "nest" for the new flora.

Another thing to consider - for UC it seems to be more effective to spread the FTs out, do one or two a week, but for several weeks. The problem in your case may have been that the spores from the original bacteria were still there, and able to re-grow the bacteria after a couple of weeks. That's why you may need to hit them again every week for a while.

[quote] All that said, the thing I did have great success with was the implementation of the procedure itself. I used disposable bags, and a special tip which my doctor suggested, which I reused. It has more holes in it, (5) and is slightly thicker, so there was no clogging problem. I turned my bathroom into my "lab". I placed my blender directly below the exhaust fan when blending, and kept incense burning...very little exposure time between the opening of the blender and the transfer into the enema bag....(Handy tip:If you keep the tube to the tip full of water when you fill the bag with your fecal solution, if there is any dripping pre insertion, it will only be water...a good thing.) If you are organized, have everything you need placed within easy reach, there is nothing messy about this at all. That said, I can't imagine doing this with an enema bottle or bag that wasn't disposable. Then there would definitely be both smell and mess. Also imperative, a compassionate helper.

The hardest part of the whole procedure for me was the time lying around everyday...(I can't imagine trying to do this if I had to work outside of my home) and the rectal irritation. Otherwise, it was pretty smooth sailing. I only wish now that I'd spent more time prepping. I plan to see a naturopath to help me with the biofilm issue.

There isn't nearly as much irritation when you aren't doing them every day. :)

Bacon Girl
Veteran Member


Date Joined May 2011
Total Posts : 5482
   Posted 12/17/2012 9:52 PM (GMT -7)   

dr. briggs, is this the biofilm supplement you are taking?

 
someone mentioned that maybe nothing works for me because i have a biofilm of yeast and bad bacteria in my gut. i am totally willing to try this. how much do you take?
Joanna, 23
Currently: 7-8 loose bms a day, urgent/bleeding.
vit D, kefir, cod liver oil, astaxanthin, magnesium,
b12 shots, spatone iron, vit C, colostrum
Tried: canasa, rowasa, entocort, pred, 6mp, remicade,
lialda, welchol, bentyl, LDN, cipro, flagyl, VSL/Vit E enema,
8 FT, clay, aloe vera, slippery elm
diet: paleo. no dairy/legumes/grains/starches/seaweeds/eggs/nuts/seeds/nightshades

Clank120
New Member


Date Joined Dec 2012
Total Posts : 3
   Posted 12/22/2012 4:18 PM (GMT -7)   
Hi,

I am in need of some information about FT if anyone here can help.

For a year and a half, I have been experiencing problems including colitis and severe dandruff that I suspect is from a deficiency in B vitamins. I have had a CDSA done through Genova diagnostics and it showed lowered amounts of beneficial bacteria, even no growth in some strains. Furthermore, the CDSA and a colonoscopy biopsy revealed inflammation and colitis. On top of that, I had to have my appendix removed last year because of appendicitis, which is related to an inflammation. I am convinced that my problems are all related to the dysbiosis in my GI tract and I am trying relentlessly to fix it.

I have been on a low carb diet for months and have tried all sorts and brands of probiotics and found almost no relief. The only relief that I got from the severe dandruff was an antifungal Diflucan. I became very interested in Fecal Bacteriotherapy after reading u on how effective it is for all kinds of patients.

So far, I have tried FT at home twice with each attempt having its flaws. The first time, I did not get the right amount of solution in and the second time the enema kept getting clogged so it took a very long time to get the solution in. Before each attempt, I tried to cleanse my system out through a water enema and that worked pretty well.

Can someone detail a method for preparing for a FT at home? I need to know how to do a proper cleanse and how long to keep the solution in and everything. Thanks

Briggs
Regular Member


Date Joined Oct 2012
Total Posts : 66
   Posted 1/3/2013 7:05 AM (GMT -7)   
bananagirl said...
dr. briggs, is this the biofilm supplement you are taking?
https://www.protherainc.com/prod/proddetail.asp?id=K-INT



someone mentioned that maybe nothing works for me because i have a biofilm of yeast and bad bacteria in my gut. i am totally willing to try this. how much do you take?


Sorry for the late response, I've been away for a while.

Yes, that is the biofilm supplement I took. You need to take it well away from meals, since otherwise the enzymes will just go into digesting food. Since I eat 5-6 meals a day, that meant for me that the best time to take it was at night (I would take it in the middle of the night when waking up). The downside of taking it at night though is that breaking down the biofilm seems to produce a lot of gas - and if you are laying down after taking it, that gas can't get out, so it builds up and can get painful. But, that is how I did it.

Sometimes it also gave me some pretty strong diarrhea afterwards, which was very surprising - I hadn't been having any diarrhea since starting the SCD, so it took me by surprise. I think it was due to the biofilm breakdown and gas buildup.

I usually only took one or two pills at a time - any more and the gas was very severe. I only took the pills for about two weeks, starting a week before my first FT. I didn't take them every day the second week, but I made sure to take them for a few days before my FTs (on the weekends), to help clean things out.

Update: I seem to keep getting better and better. I am coming more off the SCD day by day, and seem to be able to eat anything except wheat. I am trying to avoid eating gobs of complex carbs, but I am eating things like potatoes, gluten-free pizzas, rice, rice noodles, etc., with no problems.

Briggs
Regular Member


Date Joined Oct 2012
Total Posts : 66
   Posted 1/3/2013 7:08 AM (GMT -7)   
Clank120 said...
Hi,

I am in need of some information about FT if anyone here can help.

For a year and a half, I have been experiencing problems including colitis and severe dandruff that I suspect is from a deficiency in B vitamins. I have had a CDSA done through Genova diagnostics and it showed lowered amounts of beneficial bacteria, even no growth in some strains. Furthermore, the CDSA and a colonoscopy biopsy revealed inflammation and colitis. On top of that, I had to have my appendix removed last year because of appendicitis, which is related to an inflammation. I am convinced that my problems are all related to the dysbiosis in my GI tract and I am trying relentlessly to fix it.

I have been on a low carb diet for months and have tried all sorts and brands of probiotics and found almost no relief.

Can you clarify your low carb diet? Are you on the Specific Carbohydrate diet (no complex carbs), or just low carb?

If you want to starve off the bacteria, you need to avoid all *complex* carbs.

Also, have you tried S. Boulardi? That can help with getting a bacterial or fungal overgrowth down some - I took it for months before my transplants, and am still taking it.


Clank120 said...
So far, I have tried FT at home twice with each attempt having its flaws. The first time, I did not get the right amount of solution in and the second time the enema kept getting clogged so it took a very long time to get the solution in. Before each attempt, I tried to cleanse my system out through a water enema and that worked pretty well.

Can someone detail a method for preparing for a FT at home? I need to know how to do a proper cleanse and how long to keep the solution in and everything. Thanks


See the description I posted on page 4 of this thread.

Bacon Girl
Veteran Member


Date Joined May 2011
Total Posts : 5482
   Posted 1/3/2013 7:32 AM (GMT -7)   
dr. briggs. i ended up trying your method for 2 nights of taking it on an empty stomach before bed. you are right- it was an excruciating few nights. i thought about going to the hospital because my stomach pains were so severe. i didn't sleep at all because i thought i was either gonna throw up blood or have my stomach burst (is that even possible?). so the past 3 days, i've taken it in the morning a little before breakfast. this works best and doesn't make me wanna die.
Joanna, 23
Currently: 4-8 loose bms a day, urgent/bleeding.
vit D, kefir, cod liver oil, astaxanthin, magnesium,
b12 shots, spatone iron, vit C, colostrum, interfase enzymes
Tried: canasa, rowasa, entocort, pred, 6mp, remicade,
lialda, welchol, bentyl, LDN, cipro, flagyl, VSL/Vit E enema,
8 FT, clay, aloe vera, slippery elm
diet: paleo/scd
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