Fecal Transplant and Diet (SCD currently)

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Briggs
Regular Member


Date Joined Oct 2012
Total Posts : 66
   Posted 1/4/2013 11:40 AM (GMT -7)   
bananagirl said...
dr. briggs. i ended up trying your method for 2 nights of taking it on an empty stomach before bed. you are right- it was an excruciating few nights. i thought about going to the hospital because my stomach pains were so severe. i didn't sleep at all because i thought i was either gonna throw up blood or have my stomach burst (is that even possible?). so the past 3 days, i've taken it in the morning a little before breakfast. this works best and doesn't make me wanna die.


:)

Yeah, that is probably a better approach - and your experience is exactly like mine. The actual transplants are unpleasant, but they paled in comparison to the gas pain from the Interfase. It was soooo much worse when taking it in the middle of the night - I assume because of gas not being able to work its way out as well.

zucchini
Regular Member


Date Joined Jun 2010
Total Posts : 389
   Posted 1/4/2013 2:44 PM (GMT -7)   
Dr. Briggs, you say you seem to be able to eat everything except wheat. Have you tried wheat or just avoiding it (I seem to remember somwhere previously that you knew you reacted to gluten).

I'm just curious if you are avoiding it because it caused a problem previously or if it caused a problem post-FT.

Sounds like things are going well for you. That's awesome to hear! Please keep us posted.
Ulcerative Colitis diagnosed April 2010 at age 37
Female, mom of 2
Canasa made things worse. Hydrocortisone made no difference.
Tried SCD ... 6 mos in 2010. GAPS diet 4 mos in 2011. Not sure if these helped.
Remission for 16 mos gluten-free, mostly grain-free, semi-paleo, alternative healing routes.
Current status - Flare. Rats! Considering FT

Briggs
Regular Member


Date Joined Oct 2012
Total Posts : 66
   Posted 1/7/2013 7:58 AM (GMT -7)   
zucchini said...
Dr. Briggs, you say you seem to be able to eat everything except wheat. Have you tried wheat or just avoiding it (I seem to remember somwhere previously that you knew you reacted to gluten).

I'm just curious if you are avoiding it because it caused a problem previously or if it caused a problem post-FT.

Sounds like things are going well for you. That's awesome to hear! Please keep us posted.

I started having a problem with gluten about 18 months ago, long before the FT, at the same time as I had appendicitis. I'm not sure if there was any connection between the appendicitis and the gluten issue. I'm optimistic that as my intestines heal, over time I will get over the gluten intolerance.

Clank120
New Member


Date Joined Dec 2012
Total Posts : 3
   Posted 1/8/2013 1:49 PM (GMT -7)   
Hi Dr Briggs,

My diet is pretty much oatmeal with some strawberries in the morning, apples, chicken, fish, broccoli, and potatoes.

Just as a reminder, my problems are some colitis and severe dandruff and hair loss from a biotin deficiency, which is because of the lack of gut flora. I did about three decent attempts but didn't really know what to do as far as preparation is concerned. Although my bowel movements have improved, I do not believe that the bacteria were successfully transplanted. This procedure is my only hope and don't really know where to go from here. I am considering trying antibiotics beforehand or just trying to completely clear GI tract like before a colonoscopy. Any advice would be helpful. Thanks

Briggs
Regular Member


Date Joined Oct 2012
Total Posts : 66
   Posted 2/28/2013 11:14 AM (GMT -7)   
Clank120 said...
Hi Dr Briggs,

My diet is pretty much oatmeal with some strawberries in the morning, apples, chicken, fish, broccoli, and potatoes.

Just as a reminder, my problems are some colitis and severe dandruff and hair loss from a biotin deficiency, which is because of the lack of gut flora. I did about three decent attempts but didn't really know what to do as far as preparation is concerned. Although my bowel movements have improved, I do not believe that the bacteria were successfully transplanted. This procedure is my only hope and don't really know where to go from here. I am considering trying antibiotics beforehand or just trying to completely clear GI tract like before a colonoscopy. Any advice would be helpful. Thanks


Sorry for not responding sooner (a lot sooner) - with my UC seeming to be completely gone, I'm getting caught up in other things, so I have to remind myself to occasionally check out this thread.

Potatoes are often not well digested if you have a compromised GI system, they have lots of complex starches in them. I can eat them now without problems, but before the transplants they gave me issues - and early on after the transplants when I ate potatoes they would give me a very mushy stool afterwards (I have continued healing since the transplants, and now tolerate everything very well it seems - except wheat).

Oatmeal also contains complex carbs. If you want to get rid of the bad bacteria, you need to either starve them off - which means NO complex carbs at all (Specific Carbohydrate Diet, SCD) - or antibiotics. Personally I prefer the SCD approach, but it is definitely not the easier approach. I'd also recommend using an enzyme for eating up biofilm before you start the transplants.

curl3d
Regular Member


Date Joined Feb 2012
Total Posts : 382
   Posted 2/28/2013 2:48 PM (GMT -7)   
Hey Briggs cool to see you're getting on so well! I'm also still here and still in remission, just been very busy with practical life stuff the past weeks.
Status: In remission since beginning of April 2012
Diet: No gluten, no starches and avoiding eating much sugar.
Medicine: Asacol 4x100 daily
FT: Performed Fecal Bacteriotherapy at home using my wife as donor starting the 29th of February for 27 days. Please see tinyurl.com/bw5fn8g for the procedure I used

TroubledTurds
Veteran Member


Date Joined Jan 2004
Total Posts : 8092
   Posted 3/17/2013 5:14 PM (GMT -7)   
you'll probably get all kinds of answers way better than mine but here goes anyway -

i do the caveman version vs the engineer version :

no blender - just put the donor material (henceforth known as "poop") in a small mixing bowl and use a fork or other stirring device - add distilled, saline, sterile, or ***ushima nuclear plant run-off water and mix away to create a semi thick liquid depending on your delivery system - i just use an old enema bottle so the mix texture isn't so critical - i would mix as much as you see fit, allowing for the learning curve of getting the poop in the hooter - some spillage/leakage is eminent so refill as needed - assume the usual enema position (the one than gives you the quickest path to the shower) and insert, squeeze, hold your breath till passing out is moments away, and then smile and RELAX - chill as long as possible - the longer the visiting poop spends with host poop the better -

if you encounter a fail, gather yourself, and have at it again - it only gets better -
diagnosed with pancolitis december 21, 2003
currently taking: -- Astaxanthin,vit D, ALA, DHEA, a smorgassbord of probiotics, & Wild Harvest Inflamma Shield -
No Gluten, Rice, Corn, & Dairy - limited Sugar -
No Meds - Just good, healthy food -
Lots of H2O, exercise & sleep as much as possible & enjoy this great life that God has blessed me with -

Pine Tree
New Member


Date Joined Sep 2011
Total Posts : 9
   Posted 3/17/2013 5:43 PM (GMT -7)   
Hey curl3d - the tinyURL you provided a while back in the thread with link to your instructions no longer works. Would enjoy having a look at those. Any chance you can repost?

Thanks to Dr. Briggs and all the others who have shared so much valuable info on this thread. I've thoroughly enjoyed reading it & learning, as I prepare to do the FT therapy in the coming months...
lower sig. UC since 2002
Current: mostley asymptomatic; GAPS/SCD Diet; Mutaflor 2xDaily; Biokult; Teraganix EM; occasional "Mutaflor" retention enema in 35mL Chamomile tea; Tibetan Herbs

Discontinued: Asacol, Boswelia, Kyolic, VLS3

pemenlove
New Member


Date Joined Apr 2013
Total Posts : 2
   Posted 4/4/2013 11:42 PM (GMT -7)   
I have leaky gut syndrome and intersticial cystitis. I am looking to do a fecal transplant by NJ tube placement by my self at home with my co workers who are also nurses. I am getting the placement checked by x ray to make sure it is in the small intestine. My donors stool was checked for everything imaginable. i was planning to do it for five days straight. I don't know if i should do that or do it for a few days and then do it again a month later. Has anyone heard of doing into the small bowel directly for SIBO or leaky gut and the side effects? The radiologist at my work is concerned for bacterial infection in the blood but i am thinking it will be fine?? I work in internal medicine and we preform them on pts with c-diff, crohns and UC and it has worked great. I wonder about leaky gut patients though...Also I can only eat two foods right now without causing inflammation..beef and cabbage. i want to do the transplant and start to eat potatoes while doing it so i can feed the good bacteria...should i do this or stick to the low carb and i was also going to do a five day fast prior to heal the gut and take oil of oreganol for two weeks to kill bad bacteria....Oh boy...this is going to be interesting...any help greatly apprecitated.!!! :)

Pine Tree
New Member


Date Joined Sep 2011
Total Posts : 9
   Posted 4/17/2013 1:32 PM (GMT -7)   
Hi Pemenlove - sorry for the delay in reply. I would suggest going back through this thread and reading the post Dr. Briggs did with all his instructions. Please feel free to email me as well. I will post my email addr. on my profile for the next 2-3 days so you can access it, then delete it (so its not public!)
lower sig. UC since 2002
Current: mostley asymptomatic; GAPS/SCD Diet; Mutaflor 2xDaily; Biokult; Teraganix EM; occasional "Mutaflor" retention enema in 35mL Chamomile tea; Tibetan Herbs

Discontinued: Asacol, Boswelia, Kyolic, VLS3

beachlife
Regular Member


Date Joined Feb 2009
Total Posts : 473
   Posted 6/11/2014 2:31 PM (GMT -7)   
michella! Not sure if you're still around, but would love to talk to you about your Ayahuasca experience, I'm starting to plan this for my mens group and one of my intentions going in would be around IBD.
http://lifewithcolitis.blogspot.com/
Flexitarian, Gluten Free, Health coach and Yoga teacher
'00 - UC - Proctitis
your beliefs become your thoughts, your thoughts become your words, your words become your actions, your actions become your habits, your habits become your values, your values become your destiny

Guardian7
Veteran Member


Date Joined Apr 2006
Total Posts : 2682
   Posted 6/11/2014 2:43 PM (GMT -7)   
Gabor Mate got me interested in Ayahuasca... Too bad I can't obtain it here in the states.

Let me know how your experience goes.
"After six eleven years in a place like this, you either learn to laugh...or you go insane."

becky 9/24/04
Regular Member


Date Joined Sep 2012
Total Posts : 76
   Posted 6/14/2014 5:55 AM (GMT -7)   
yeah I am so excited by this thread as Briggs is verbalizing the new theory for immune disorder development in such eloquent terms.

There is so much study on the GI tract and the relationship of bacterial flora and overall health right now demonstrating what we at Healing Well have been talking about for a while.

Being both a UC patient and a Nurse allows me to see both the research and the results of it.

I have done Fecal Transplant myself using my 1-year old's poo with great results (reduction of symptoms, flares heal quicker). I will note, however, that several fecal transplants are sometimes needed to be performed for full benefit.

I have also noticed that doing enemas during a flare help the symptoms as well (reduction of pain, diameter of stools is larger). This supports the theory that our immune systems are reacting to a pathogen (the pathogen is being flushed out in an enema).

Also, I have noticed that when I eat very acidic foods (I LOVE VINEGAR and coffee!) I have seen a return of symptoms (bloating, pain, foul smelling poo, flaring with blood and mucuous). This also supports the theory that I am killing certain bacteria in my gut by burning them with acid. This happens with popcorn kernels too (which may scrape at the colon- baring it to bad bacteria)

Finally, I have noticed a major reduction in symptoms after taking VSL #3 which is specially formulated for people with Gut problems (less bloating, diameter of stools increases).

I love this site because we can all get together and brainstorm! Thanks!
was on 150mg Imuran, now on 100mg!
was on probiotics twice daily, now just daily
was taking boswellia, now not
was taking aloe vera4x/day,now not
was taking l-glutamine4x/day, now not

MEDS that DON'T work for me:

Mesalamine (Lialda) Oral/rectal- Torrential D and V
Cortifoam Enemas- Made Blood Worse
Sulfasalazine-Made D worse


NO COFFEE, HOT PEPPERS, ASPARTAME OR MSG FOR ME!!!!

sharron19
Regular Member


Date Joined Jun 2013
Total Posts : 248
   Posted 6/14/2014 12:42 PM (GMT -7)   
Great Beaky! Thanks a lot for your comments. I'm planning to start the transplants in a month time and not sure whether to start using steroids beforehand. As you probably know by now most of people who have done the transplants strongly suggest to control the inflammation before the initial transplant. I noted that you've done enemas during a flare and felt an improvement. Very useful information. Thanks.

I agree with you, this thread is great. I wish Dr. Briggs wrote from time to time and updated us on his situation. I hope he is just away living his non-UC life now. Such a valuable writer in this forum! I guess we'll just have to use and thank him for what we've already have learned from him.

Wishing you a cure.

Sharron

Post Edited (sharron19) : 6/26/2014 4:25:29 PM (GMT-6)


solomani
Regular Member


Date Joined Nov 2012
Total Posts : 38
   Posted 8/6/2014 9:30 PM (GMT -7)   
Coming back to this thread two years later and just curious if the OP is still in remission?

I have a consultation in November with Professor Borody about getting the FMT procedure done here in Australia and just wondering how you (and anyone else) has gone with it? I know Prof. Borody's original patients are still in "remission" 20+ years later.

m-dot
Regular Member


Date Joined Dec 2009
Total Posts : 71
   Posted 8/6/2014 10:45 PM (GMT -7)   
Hi solomani.

If you get a chance please email me : ironmanspanky at yahoo dot com dot au. I have good information for you regarding your upcoming treatment in Five docks

solomani
Regular Member


Date Joined Nov 2012
Total Posts : 38
   Posted 8/7/2014 6:23 PM (GMT -7)   
m-dot said...
Hi solomani.

If you get a chance please email me : ironmanspanky at yahoo dot com dot au. I have good information for you regarding your upcoming treatment in Five docks


Email sent!
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