yesterday marked the 2 year anniversary of Christopher's colon removal and i am so happy to say that my baby is doing good. he is colon-free, disease-free and medication free. he takes a multi vitamin, fish oil and the occasional probiotic. he doesn't buckle in pain and cry over the toilet. he doesn't have to take pharmaceuticals that make his hair fall out and his body swell, and i don't have to worry if those medications are going to make him sick in other ways. i don't have to wonder about
when or how severe his next flare will be, because it wont be. he goes to school, he has energy to play with his sister. he's actually able to eat without being anxious about
how bad it's gonna hurt later. he can eat pizza and popcorn and sodas, all things his body couldn't handle when he had UC.He is finally growing again. I haven't seen a single drop of blood in the toilet in 2 whole years, i hardly even look anymore.
Now all that said, it's not all perfect, but it's pretty darn close. there are some minor problems we've faced. he had c-diff pretty bad in the months after surgery and that was scary. then he had pouchitis for a long time (more than a year) and took antibiotics everyday. Pouchitis was a walk in the park compared to his UC. he also has little accidents here and there and sleeps in a diaper because he looses the ability to contain his poops while asleep. And as a 1st-grader with a lowered immune system he catches every little illness that passes through the school. he also has more severe symptoms and stays sick longer than the rest of us.
Chris developed UC as an infant and the disease got more and more severe. the medications helped only minimally if at all, and had bad side effects. at age 5 we opted for surgery and haven't looked back. i wouldn't give him one day of what he suffered from the UC in exchange for a perfectly functioning digestive system. in retrospect i wish he'd had the surgery much sooner. if my daughter develops severe UC i wont think twice about having her colon removed.
Surgery is not the right option for everyone, but it is a viable option. if your UC is preventing you from living the life you want to live, think about it, talk about it with your doctor, learn as much as you can.
i hope you all find relief however you can and i hope for a bright future with a better cure for UC.
lots of love,
ooh also, i read this great article the other day about how scientists are finally learning more about how FT can help with things like C-diff and UC and that they have picked out 6 specific strains of bacteria effective againstthem and are working to make that more available to inflicted individuals.