I also have a young daughter with UC. She was diagnosed when she was 9. She just turned 12.
I just want you to filter a lot of the info you get from others regarding the treatment of your son. I have found that kids with UC and adults are very different...therefore it is important to really trust your GI.
It sounds to me that your GI is really terrific. The fact that he put him on VSL right away is pretty amazing!
My daughter also needed to be on Prednisone for several months at 40mg to get the UC symptoms under control.
I just wanted to say that it does seem like your GI is really on top of it and I would keep on this path.
It is very hard to restrict the diet of a 10 yr. old. You can see what changes you are able to make...I try to limit sugar and dairy but I am not even sure it makes a difference.
Our kids now already feel so different from all that they have to do now with this diagnosis I, it is really hard to restrict them even more.
Sounds like you are doing a great job with your son- life will get better and one of the most important thing for our kids at this age is to get them to grow and get through puberty.
When he starts to get better keep him on the meds, the goal being no uc symptoms and a healthy colon for a long time!
Daughter, age 12. Diagnosed with UC 10/2009 (Pancolitis)
Unable to take mesalamines.(Made her symptoms worse)
Husband- Diagnosed 09/11 with proctitis-
Asacol 3 @ 2 times a day
Post Edited (IBDISTHEPITS) : 12/28/2012 11:30:38 AM (GMT-7)