OT - what now ? sheesh !

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TroubledTurds
Veteran Member


Date Joined Jan 2004
Total Posts : 8336
   Posted 1/13/2013 7:44 PM (GMT -6)   
not a lot of activity on the heart forum, so i thought i'd throw this out here, knowing that there are a lot of really intelligent, well read & knowledgable members on here - plus, you guys are just kick-ass awesome !
 
 
 
so i've been on the uc forum since january 04 - this past summer i finally got things figured out and have been med and symptom free for 6 months -
saw my regular doc in nov to get a refill on my asthma inhaler - during the exam he detected a murmur - then echo was done in dec -
results:
small left ventricular size w/normal left vent global systolic function
mild concentric LV hypertrophy w'diastolic dysfunction is present - enlarged : (arortic root)
thickened calcified arortic valve w/moderate stenosis and mild regurgitation
thickened mitral valve
tricuspid valve w'mild regurgitation
pulmomic " " " "
mild mitral annular calcification
moderate pulmonary htn
blah blah blah
so, what the heck does all this mean - the doc explained it but my tiny brain did not compute -
am i up a creek without a poodle ?
should i cancel my subscription to longevity magazine ?
should i take the money i was saving for the upcoming future trip to mars and give it to the society for the prevention of rational thinking ?
any thoughts would be appreciated :-)

quincy
Elite Member


Date Joined May 2003
Total Posts : 30601
   Posted 1/13/2013 8:35 PM (GMT -6)   
I have a mild one as well...I'll have to dig up my results and see how yours and mine compare.

q
*Heather* I give suggestions, do with them what you will.
Status: ...Asacol 3 @ 2x daily; Salofalk enema @ 3rd night (nightly/ flares, tapered/maintenance)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol 20mg as needed; Zantac 150mg; Pulmicort/Airomir (asthma);Effexor XR 37.5 (depression)
~vitamins/minerals/supplements; Probiotics....(RenewLife Ultimate Flora Critical Care+Primadophilus Reuteri capsules @ bedtime)
~Metamucil capsules 6 twice daily with meals; Vitamin D 4500 IU
~URSO for PBC(or PSC?) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!

sherbear46
Forum Moderator


Date Joined Jun 2011
Total Posts : 3316
   Posted 1/14/2013 1:56 AM (GMT -6)   
Sorry have no advice just wanted to comment that being up a creek without a poodle made me giggle while I'm chugging this vile prep. Thanks for that!
Co-Moderator UC and Breast Cancer forums

Sheri-40 years old

Diagnosed UC/IBS April 2009-suffered over a year prior to diagnosis.
Diagnosed Chronic Uticartia January 2013-have had it for 10+ years before diagnosis

Currently taking Lialda 2 tabs in AM, Protonix 40mg, Allegra, Singulair, Xyzal, Probiotics, Vitamin D3, Hydroxyzine (as needand) Generic Rowasa enema twice a week.

ItsAlwaysSomething
Veteran Member


Date Joined Oct 2011
Total Posts : 1414
   Posted 1/14/2013 8:23 AM (GMT -6)   
Have you posted your question on the "Heart and Cardiovascular Disease" forum?
Perhaps someone there can provide insight.

Didn't your doctor give you some insight as to the seriousness of your condition?
Did he/she tell you if further testing or treatment is needed?

There are several sites with related info, some from Mayo Clinic.
Here's one that might be helpful.
http://www.ehow.com/how_5333731_read-echocardiogram.html

Best of luck.
Female, USA
Diagnosed pancolitis 12/2003. Now only left-side inflammation.
Colazal generic (balsalazide) and mesalamine enemas.
Benebiotics probiotic, multi-vitamin with iron, Starwest organic slippery elm powder, L-Glutamine, fish oil. Avoid lactose and most gluten products.

Post Edited (ItsAlwaysSomething) : 1/14/2013 7:30:37 AM (GMT-7)


TroubledTurds
Veteran Member


Date Joined Jan 2004
Total Posts : 8336
   Posted 1/14/2013 8:54 AM (GMT -6)   
fyi =
the heart forum has <18,000 posts
the uc forum has >280,000 posts
diagnosed with pancolitis december 21, 2003
currently taking: -- Astaxanthin,vit D, ALA, DHEA, a smorgassbord of probiotics, & Wild Harvest Inflamma Shield -
No Gluten, Rice, Corn, & Dairy - limited Sugar -
No Meds - Just good, healthy food -
Lots of H2O, exercise & sleep as much as possible & enjoy this great life that God has blessed me with -

TroubledTurds
Veteran Member


Date Joined Jan 2004
Total Posts : 8336
   Posted 1/14/2013 9:27 AM (GMT -6)   
so it wasn't bad enough that i had to learn "chill out" when it came to pharmacy visits, asking about butt meds, but now i get to go in and ask someone's 18 year old daughter working behind the counter, for VIAGRA ! yep, for those who didn't know, v was originally a heart med - hopefully i can get the wife to make that stop - i guess she won't mind :-)

Post Edited (soystud) : 1/14/2013 10:49:43 PM (GMT-7)


IamCurious
Veteran Member


Date Joined Jan 2010
Total Posts : 3180
   Posted 1/14/2013 2:08 PM (GMT -6)   
I am not not not a doctor so don't take what I say to be Gospel. I really hate it when people think they have all the answers.

But please do some research and ask questions from a professional about some of the findings in this website. It discusses aortic stenosis and calcified heart valves and how vitamin K2 might help.

http://www.lef.org/magazine/mag2011/nov2011_Avoiding-the-Catastrophic-Event_01.htm?source=search&key=aortic%20valve
Male/61 DX IBD in Feb08. No meds, allergic to Mesalamine. Remission since Mar10. Powdered psyllium seed mixed with VSL3 is very helpful. Food journal instead of SCD or Paleo.

Lots of fruit & vegetables (but no plums or cruciferous), No Gluten, no soda, no HFCS, no xylitol or sorbitol, no trans fat, no shellfish, few processed foods, no carrageenan.
Probiotics, fish oil, multivitamin, extra D3, K2, E complex, phos choline, magnesium, boswellia, curcumin, DGL, glutamine.
Nature created all of the locks, therefore Nature has all of the keys

stereofidelic89
Veteran Member


Date Joined Sep 2011
Total Posts : 1990
   Posted 1/14/2013 7:49 PM (GMT -6)   
soystud said...
so it wasn't bad enough that i had to learn "chill out" when it came pharmacy visits, asking about butt meds, but now i get to go in and ask someone's 18 year old daughter working behind the counter, for VIAGRA ! yep, for those who didn't know, v was originally a heart med - hopefully i can get the wife to make that stop - i guess she won't mind :-)


LOL you made me laugh! Curse you, this is a serious matter, hope you can find the answers you are looking for about your results. Here's an ideal emoticon with a side of unsure face to help you along! idea

Madcat25
Veteran Member


Date Joined Oct 2012
Total Posts : 1116
   Posted 1/14/2013 9:30 PM (GMT -6)   
Ask Dr. House :)
ASK THE CAT
UC Forum Moderator

Ulcerative Colitis diagnosed Oct 2007. Prednisone for flares until Oct 2012. Half-remission from Remicade.
Currently on: Prednisone 20 mg, Imuran 50 mg, Remicade 300 mg (3 infusions)
Supplements: Ultimate Flora x 1, L-glutamine 1000 mg x 1, VSL #3 x 1

Old Mike
Veteran Member


Date Joined Jan 2007
Total Posts : 3865
   Posted 7/10/2015 7:35 AM (GMT -6)   
Did some quick searching still not much on the heart forum on k2.
Seems that hardening of the arteries is really related to calcium being in the wrong place, and that k2
moves it back to the bone and out of the arteries or prevents it being there in the first place.
Also seems to me that the medical establishment knows this,but not much done with the info.
The French paradox of low heart disease is bull, not all that much to do with red wine, but k2, eat a lot
of liver pate and cheese. Seems gouda edam and even some blue cheese have higher amounts.
 
Since docs don't seem to be using this info for hardening of the arteries, or the actual cause is lack of K2
I wonder if they are doing the same with UC, cause/how to fix might be known but no one is paying attention.
Of course there seems to be a more direct easy to detect, K2 effect on calcium movement than
there is for a causal effect, what ever it is for UC.  Hard to believe the medical community would do this
but sometimes I wonder.
Random thought of the day.
Old Mike
 
Oh here is my experience with k2 from a 2012 post.
I find my own comments interesting where the gut bacteria seemed to go crazy, believe I stopped k2
very quickly.  At some point might try again with much lower dose, or eat more gouda.
 
Took only 100 micrograms vitamin K2/MK-7 around 4 in the afternoon,
by 4:30/5 was getting gassy cramps,then pooed for about an hour. Then had gas all night and even this am. Had not eaten anything during the day that should have given me that much gas.
It is like the metabolic rate of the colon bacteria quadrupled or something.
The colon bacteria are supposed to make vitamin K,trying to find out if they need K for metabolism,something for sure is going on. Have to cut dose way back,to be hopefully sure this does not happen again.  Not a fun experiene.
Have to check the stuff I bought to make sure nothing else strange is in the pill.
I know I get little K2 from diet,but the bacteria went crazy which I find interesting,if I can stand the gas. Seems that I might be very deficient in vitamin K.
Early work on vitamin K,downloads slow.
Seems that some bacteria including MAP need vitamin K to grow.

UC-1980, same flare since 1986. Still smoke. MEDS: None
Radical Induction Theory-You are being oxidized.
You must also get the VDR working correctly, peroxides irreversibly inhibits the VDR.
R Lipoic Acid, NAC, Sodium Butyrate, Selenium, Vitamin D,B2 to insure reduced glutathione.

London Lurker
Veteran Member


Date Joined Feb 2013
Total Posts : 1048
   Posted 7/10/2015 1:54 PM (GMT -6)   
Sorry I can't read that stuff either. There's a high profile Brit charity called British Heart Foundation, I can't see how busy their forum is as you have to join first but maybe worth giving it a try? community.bhf.org.uk

K2 pills (Natto based) did badly for me too but I seem to be Ok with butter.

Do you take a lot of Vit D? I have read too that without K2 it can cause calcium to leech to the arteries.

Old Mike
Veteran Member


Date Joined Jan 2007
Total Posts : 3865
   Posted 7/10/2015 2:03 PM (GMT -6)   
It was just a random thought of the day, I take about 5000IU of D when ever.
Was taking it on a regular basis.
OM
UC-1980, same flare since 1986. Still smoke. MEDS: None
Radical Induction Theory-You are being oxidized.
You must also get the VDR working correctly, peroxides irreversibly inhibits the VDR.
R Lipoic Acid, NAC, Sodium Butyrate, Selenium, Vitamin D,B2 to insure reduced glutathione.

ewafromwarsaw
Veteran Member


Date Joined Jun 2013
Total Posts : 1233
   Posted 7/11/2015 4:20 AM (GMT -6)   
i don't know much about cardiology but when they write that something is "mild" as they do in your description, then i'm sure it's nothing to worry about :), btw, maybe you should try taking the probiotic IamCurious was once recommending, Reuteri plus cardiovascular protection
Ewa, 24 yrs old from Warsaw
Left-sided colitis, diagnosed in September 2012
Current meds: 2x2 Asamax (500 mg) and Salofalk enemas (twice a week)
Mutaflor or VSL#3

zengrrl
Veteran Member


Date Joined Jul 2014
Total Posts : 613
   Posted 7/11/2015 12:23 PM (GMT -6)   
I recently had a transesophageal echo done when my echocardiogram revealed tricuspid leakage and a hole in the heart. The TEE revealed a different, non dangerous type of hole that 1 in 5 humans have. It also revealed mild tricuspid regurgitation and a mildly dilated left vent. The only thing my cardiologist was concerned with was mild to moderate pulmonary htn.

You might want to read "How to Prevent and Reverse Heart Disease" by Caldwell Esselstyn, a cardiologist. But his "cure" is to go totally vegan with NO OIL. I was on the diet for nearly a year and my cholesterol plummeted. So did my weight. Then I got slammed with UC, gah! I hope you get good advice soon!
Lialda 4x; Mesalamine enemas nightly;
on Colonoscopy 10/17/14, Dx UC and/or Crohn's; Symptoms began after smoking cessation
Supplements: PB8 pre/pro-biotic, Purified Omega3 fish oil, Curcumin-C3, psyllium husk powder, Metagenics Glutagenics powder, Vit D, LDN 3mg
Diet: Ex vegan "The Abascal Way to Quiet Inflammation" Cathy Abascal

subduedjoy
Regular Member


Date Joined Dec 2012
Total Posts : 132
   Posted 7/11/2015 10:15 PM (GMT -6)   
Thanks for posting. Your heart issues could be due to age, vitamin/mineral deficiencies, and/or Prednisone (if you were ever on Prednisone before).

I wouldn't take that trip to Mars yet. As Old Mike says, K2 may help move the calcium to where it belongs. Research the Internet (like you are doing now) to find more information.

TroubledTurds
Veteran Member


Date Joined Jan 2004
Total Posts : 8336
   Posted 10/7/2016 6:39 PM (GMT -6)   
hey, for some reason i didn't respond to all of you when i posted this - so sorry for that and thank you all for the information and well wishes :-)

it's time to go see my GP about a couple of things, so i've been going back and reading a bit before i see him - this thread being on my list -

a little over a year later and no changes one way or the other - i did up my leafy green consumption, which was pretty hefty already, but i may decide to start supplementing some K - just not sure how much rolleyes

again, thanks all !
dx'd with pancolitis 12/21/03
current supplements:vit D, cal/mag, Psyllium Seed powder/Heather's Acacia fiber/ L-Glutamine/Hemp powder slurry 1x/week - grain free/paleoish diet that includes 100% grass fed beef, raw goat milk, & local organic free range eggs, lots of all natural well water, exercise, sleep as much as possible & enjoy this great life that God has blessed me with !

Michelejc
Forum Moderator


Date Joined Jan 2011
Total Posts : 2126
   Posted 10/10/2016 8:11 AM (GMT -6)   
And ahhhh...how ya doing on the Viagra? smilewinkgrin smilewinkgrin
MODERATOR-UC FORUM
57, female - diagnosed with moderately severe proctitis/mild diverticulosis
Lialda - one a day
6mp - 50 miligrams
VSL#3 DS - 1 pack a day or as needed
Zocor - 40 mg
Calcium with Vitamin D
Glucosamine
Magnesium
B-Complex

"Fly under the radar" - Dad -

TroubledTurds
Veteran Member


Date Joined Jan 2004
Total Posts : 8336
   Posted 10/11/2016 8:15 AM (GMT -6)   
uhhh, thanks for asking shocked
dx'd with pancolitis 12/21/03
current supplements:vit D, cal/mag, Psyllium Seed powder/Heather's Acacia fiber/ L-Glutamine/Hemp powder slurry 1x/week - grain free/paleoish diet that includes 100% grass fed beef, raw goat milk, & local organic free range eggs, lots of all natural well water, exercise, sleep as much as possible & enjoy this great life that God has blessed me with !
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