Nightmare

this is pretty common. i've been going around 3-4 times a day the past week and i can literally time when they will be- always when i'm sleeping. i usually have 1 at night but 2-3 are usually during the sleeping hours 12 am-12pm. it's tough to go to bed afterwards because i end up being awake in the bathroom.

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Joanna, 23
Currently: 3-6 loose bms a day (7-8 on bad days) urgent and gassy
vit D, coconut kefir, cod liver oil, astaxanthin, magnesium,
b12 shots, spatone iron, vit C, colostrum, interfase enzymes,
scdophilus
Tried: canasa, rowasa, entocort, pred, 6mp, remicade,
lialda, welchol, bentyl, LDN, cipro, flagyl, VSL/Vit E enema,
8 FT, clay, aloe vera, slippery elm
diet: paleo/scd

It might have something to do with your eating habits. If your biggest meal of the day is dinner that may be the cause. Try eating a bigger lunch and a smaller meal in the evening and see what happens. Just remember that if I am right then your worst time of the day may come 5 hours earlier than it is now. It may also have something to do with eating different kinds of foods than what you eat for breakfast or lunch. It could also have something to do with the timing of meds.

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Asacol 400mgs 2 pillsX3; VSL#3 112.5mgs 1 pillX3; Vitamin D3 5000 ius 1 pillX2; B6 1/day; Bentyl & Swanson DAO with meals; Slippery Elm at bedtime

Discontinued: Robinul; Natural - peppermint oil, Inflaguard (Boswellia), Pepto Bismol, Omega 3 fish oil, Imodium, Beano, Zymactive, Renew Life Probiotic 80 billion, Florastor, DGL, Monolaurin

I think it is just how my system works. While flaring I have been eating more early in the day than I do later in the day, the foods I eat later should be easier on my system too, and I don't eat anything 3-4 hours before bed. No matter what, I'm up at night. I have noticed my frequency go down slightly since my first Remicade infusion the other day. Way less during the day and only 2 or 3 trips at night....hopefully this trend continues! All I can say about getting some sleep is if you can, nap during the day when you aren't going as much.

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DX:6/12 Ulcerative Proctitis,got into/kept remission w/1 Canasa nightly
Current BAD Flare began late 11/12
Flex Sig 12/14/12: Ulcerative Colitis, moderate/severe.
Taken off Canasa, put on Pred 40 mg/day,12 days later Pred upped to 60mg/day, now back to 40.
First Remicade infusion 1/15/13
Rowasa(generic)hard to retain due to frequency/urgency .
Very little improvement, if any. MAJOR weight loss!

Kevin. I was just giving you advice. I actually sleep pretty well at night most of the time. I usually eat no breakfast, small lunch, and big dinner.

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Asacol 400mgs 2 pillsX3; VSL#3 112.5mgs 1 pillX3; Vitamin D3 5000 ius 1 pillX2; B6 1/day; Bentyl & Swanson DAO with meals; Slippery Elm at bedtime

Discontinued: Robinul; Natural - peppermint oil, Inflaguard (Boswellia), Pepto Bismol, Omega 3 fish oil, Imodium, Beano, Zymactive, Renew Life Probiotic 80 billion, Florastor, DGL, Monolaurin

garylouisville, yes it's all different. But that was still a good idea to try. I will see if that works for me.

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UC since 2007. Was on prednisone until May in 2011, but not any more. Apriso.
Nutrilite Supplements (Multivitamin, Omega-3, Probiotics, Digestive Enzyme, Fiber, B-Complex, Primrose, Vitamin D3)