What were your symptoms before UC?
Symptoms of what ?
Before UC I had no diagnosis of anything. Anemia is a direct result of excessive bleeding 20+ times per day. GI doc says clotting is direct result of body trying to stop gut bleeding but occurs everywhere.
TRAUMA is why the hand clotted with UC flaring and prednisone co-factors but the auto accident is what pushed everything beyond controlled chaos and into a clot.
Now as far as micromanaging I would say that is painting with too broad a brush. My shoulder surgeon replaced some bafoon who sent me to 100 days of therapy for a FULL THICKNESS tear of my rotator, that is never going to work when they do not even touch any longer. Re-injur and stitch together i.e. surgical solution. Then he laughed at returning to 100%. So I got the BEST surgeon and he was terrific. Now did I ever question anything he was doing ? Nope. Why ? Because he has a solution to my problem. Now with the GI doc THERE IS NO CURE so I am going to have to read up and get involved. These guys are seeing a different patient every 15 minutes and barely recall your details so it pays to actively participate. Now how about
the vascular surgeon? Well I showed up and brought all my meds like the instructions said. I showed him pictures of the autoaccident because before I did not think it spectacular enough to be the cause, I know better now. I showed him a calendar with timeline because he had false info in my hospital room so I wanted him to have an accurate picture. Then I asked what surgical options were avaialable at this juncture and he said that without the angiogram he does not know. I said lets do the angiogram then. I asked about
urikinase drip assuming TPA was off the table and he made a phone call and came back after initial pessimissm and said they are
open to doing the drip post angiogram. I explored the gruesome rip and replace if the drip fails and he said they can do it but I think he felt I should not tear up the hand and wait for recannalization as he said 'if it bothers you that much'. He did say the pinky and 3rd digit were on their own, too small down there. They have pulse we both heard but tips seem to have taken emboli from clot in arch and ulner which has backed up the forearm. Now at this point I have been as they point out repeatedly in psyche : Active and appropriately involved. He gets called out in a crisis and when he gets back I said we need to wrapup and get you on to your next appt what do you think about
this bottle of Nattokinase ? I said it will either help or probably kill me so I have waited until we could talk to even
open it. He said he thought mayo was studying it and looked at the web pages I printed and slipped into glossy sleaves and said 'go ahead it wont hurt you'. As we wrapped up I said I know the procardia works because if I forget to take it my hand feels worse, I asked if he was comfortable doubling the dose as it can be given at triple my starter dose. He said sure I will get you the time released once per day double the strength.
Glad we talked because either the double procardia or the natto is improving the fingers which are also improved by resolving anemia so that whatever blood does make it into pinky is oxygen rich.
So on the topic of anemia says here : LOW ( RBC,Hgb,Hct,*MCV*
HIGH (Platelet Count, *RDW*
)High RDWIron Deficiency Anemia
: usually presents with high RDW with low MCV ( checks out above as me
Folate and vitamin B12 deficiency anemia: usually presents with high RDW and high MCV ( does not check )
So says in notes 'Microtic anemia : ferritin only 5, will start venofer for 5 days ( I was gone after 4 ).
This means the low Rbc are junk anyway and too small to do the job of having oxygen payload so even worse then it looks. But the GI would have to look for more than 2 seconds to see that.
Cause of 'Microtic anemia' in adults ? Iron Deficiency Anemia
also says Thrombocytosis : platelet count expected to come down with improvement of anemia.That is complete validation of my request to GI doc to address this severe anemia which is a symptom of a bad UC bloody flare.
Clots : Caused by trauma. Not caused by heart valve infection. Hypercoag work up so far 'nml'. Mayo : Protein C - Negative in range, Protein S - Negative in range, Factor V Leiden - Negative, Factor V Leiden interpretatio - Individual does NOT have f v l ( R506Q ) mutation. May have other risk factors for thrombosis. If other indications suggest Coag consultation 83093 ( Thrombophilia Profile ).
Automobile accident : This totalled my truck and you can see all the force was head on into my drivers side at the worst angle for the left hand which was on the firm steering wheel and it braced for impact as the other hand could not being set atop the stick shift. All force went into heal of left hand.i1285.photobucket.com/albums/a593/bengelhaphoto/UlnaryArteryThrombosis/DemolishedByMonsterTruck2_zps56786a09.jpg
What does the heel of left hand look like inside ? Well the Radial artery is safely underneath thumb/palm muscle and fascia, BUT the Ulner pops out and rides on top of muscle/fascia and is vunlerable just below the surface of the skin! No protection. Take a sick guy with already goofy blood and ram a monster truck into him and you might get a clot. Filing medical claim now that they fixed the truck. This is the only explanation, all other strain to hands was done to BOTH be it the weightlifting or truck detailing and the grip tool actually rests on the radial never the ulner so that was just a bad guess on my part.
See here as 23 disappears while 16 re-appears near heal of hand :i1285.photobucket.com/albums/a593/bengelhaphoto/UlnaryArteryThrombosis/Ulner_Artery_Exposed_Radial_protected_zps95a7bfca.jpg
Post Edited (aguywithuc) : 3/16/2013 7:35:03 PM (GMT-6)