Adventureuc - Uceris is usually prescribed for only 8 weeks. How long have you been on it, what doses, and what about your future plans? I've always wondered what the docs expect you to do after the 8 weeks.
I just got back from my follow up with my GI after 3 weeks on Uceris. I asked him about
the 8 week protocol. He said it was meaningless and that it's only significance was that the study that got it approved was an 8-week study and so because it is new, 8 weeks is just a starting reference point. He then reiterated that it is a steroid and that it is not a maintenance drug and he went on to add that he would have no problem shortening or lengthening my time on Uceris if he thought there was a reason to. He said "treatment is an art, not a science". I like this GI a lot - my previous GI's were so by the book I wondered if they had any clue about
anything or if they could make a medical decision based on their experience rather than strictly established protocol.
Another thing my GI said to me - and I had the same thought the past couple of weeks - was that he did not think the Uceris was helping me, but rather that the 10 days on prednisone before the Uceris turned the tide on the flare and that is why I am so gradually (but steadily) improving and coming out of it. For me, that is how I have always come out of flares, gradually over a period of months, and this feels the same - except I had the huge jump start from the pred. So, in other words, if the Uceris were working as it ought to be, he would have expected that I was symptomatically in or nearly in remission at this point, which I am not. That said, he thought I should finish out the 8-week course, no reason to stop it when things are going in the right direction for whatever reason - don't rock the boat. I'm doing great and progressing steadily out of this flare, but I've got a ways to go to remission.
43 Year Old Male,
First flare up in 1998, dx 2001
Asacol for first 10 years, now Lialda 4/day, plus Canasa and Rowasa as needed. LDN as of Feb 24, 2012. Started prednisone 40mg 7/9/13, stopped 7/18/13. Started Uceris 7/17/13.
Supplements include: Fish Oil, Psyllium, Bosswellia, Turmeric, Bromelain, Vitamins C, D, DHEA