Posted 5/31/2013 8:33 AM (GMT -7)
Hi All... I'm behind in my posting here!
I'm going to do this a little different:
Before Starting Treatment:
Was tapering off Pred, and on Immuran
Stopped Pred and Immuran about week 2 of this treatment
Symptoms Prior To Starting Treatment:
Loose stool, Urgency, D, Mucus, Blood
Any wheat or whole grain, rice, starchy, or highly processed food caused intense D, bloating and gas, mucus, blood and in the case of wheat it caused a terrible, foul smelling "putrified" kinda poop... was nasty stuff...
Colonoscopy Results Roughly 3 Months - Prior to Treatment:
Surface Inflammation, Multiple small ulcers throughout my entire colon (looked like red dots everywhere) I was not happy, but was still an improvement over my last.
None - for a very long time....
Mostly solid stool, twice a day on average I would say. Some days more some days less. Zero urgency, zero blood, almost no mucus 80-90% of the time. No pain, no gas, no cramping.
It hasn't been to long, but I can eat wheat now without much issue but I think to much leads to visible mucus so I only eat it on rare occasions. Rice pasta works perfectly and gives lot's of bulk and perfect poops in the morning. I can endure a meal or two of highly processed foods (i.e fast food at McDonalds) or pizza but if I go two days in a row I see minor mucus.
All in all I have lost the desire for this type of food anyway for some weird reason. So I essentially eat 90% SCD, Paleo type with rice pasta when I'm extra hungry. This morning I had another piece of that Starbucks Muscli bread that use to give me all the trouble. No troubles now though I rarely eat is unless I'm super hungry and there's nothing else around.
I have to admit, sometimes I totally forget I'm ill... In fact last night I went out with a friend for a coffee and I was talking about it and said "I used to have Crohn's-Coltis".... I stopped after that and went silent... reflecting I guess over the last 10 years... I can't believe I even said that! But that's how I feel most of the time.
My body has totally changed: I put back on a bit of weight, I can exercise everyday and I almost have a somewhat muscular body now instead of thin and scrawny... I had a girl ask me if I exercised a lot, she said I have a swimmers body and that I was lucky!!! hahaha... I laughed my butt off at that. My sisters have commented as well.
I should have taken before and after pictures or something. It would be shocking.
Lastly, I'm going to ask my doctor to schedule a full on colonoscopy for me. Let's find out exactly what this treatment has done for my insides, not just my outsides. I suspect maybe minor inflammation still, but I'm not finished yet with the treatment.
I can almost give this a stamp of approval... almost. Let's give it another two weeks and dosage change and see.
Final comment. Aside from not knowing what's going on inside via a colonoscopy, I'd have to say this treatment has had a better effect than Remicade, Methotrexate and strict SCD diet all togher at the same time. I'm 1000% shocked by this. Time will tell if it hold though. Fingers crossed.
And sorry I have been busy getting back to life here...
OH - and one final note:
This treatment has some intense up's and down's and symptoms come and go, get worse and better through the dosage changes. It also SERIOUSLY messes with you mind at time like depression, or super happy etc. Bouncing back and forth. Some days/ weeks/months I was extra crazy tired as well. It made it hard to work to say the least! I wasn't sure if I'd make it through.... but I did.
If you try this treatment just be prepared for some weird and tough days/weeks/months... That's not mentioned in the literature they provide. It may impact your ability to work. Have patience, stick it through and hopefully you will see the same changes I did.
Diagnosed Crohns-Colitis about 8 years ago - Past Meds: Antibiotics, Prednisone, Methotrexate, Remicade - Current Meds: No meds at the moment -Trying Amino Acid Balancing Therapy Actually achieved full clinical remission for about 2 years using Remicade, Diet (SCD) and Exercise
“The only person you're destined to become, is the person you decide to be"... wise words