It has been a little over a year since I visited this site. But a friend of mine has an 11 yr old granddaughter that has been quite ill lately and I was telling her how this site was my saving grace when my son was ill. My son, Brandon, was officially diagnosed in February 2011 at age 14. After trying every medication on the market (none worked), 9 months on high doses of Pred (with horrible side effects), Remicade infusions (they worked for 3 days max), he underwent emergency surgery in August 2011. Followed by 3 more surgeries within 6 months, 12 hospitalizations within 12 months, and every complication under the sun, he is doing GREAT! We just marked the one year anniversary of his reversal surgery last month. We just cannot believe that an entire year has gone by.
The point of my post is to tell you that there is life after UC. We (I) did everything possible to avoid surgery. He ended up having emergency surgery after all else failed. He spent six months with a colostomy bag (and he went back to school 3 weeks after getting it) and I became an honorary stoma nurse. But he has his life back. He swims, rides jetskis, surfs, and he can eat ANYTHING! While I understand that he has his youth on his side, and the thought of surgery is scary (it scared the crap out of me!)...it is an option. And thankfully in my son's case, the best option.
It is also so important to find a great doctor. In our case, we had the absolute best physician at the Cleveland Clinic in Florida. The care that he got there was unprecendented.
I wish all of you the best, good health and positive energy! Those of you that can remember all the time I spent on this site... I just want you all to know how instrumental you all were in getting me through some really tough times.
There is life after UC.
Peace, love and good health to you all.