I've seen my gastroenterologist for years.
Here's what I really like about
him. When I say "I want to try xyz", he always says, "well, the reason I didn't prescribe that before is because abc" (usually a perfectly fine reason), and then I say, "Well I want to try it anyway," he says, "Ok" and writes a prescript
Here's something else I like about
him: He definitely has the goal of keeping me on the least invasive first line treatment unless/until other options are absolutely necessary, which is my goal as well.
So I feel like I don't have to fight him on anything, and I know that struggling to get a prescript
ion for something you think would help is a huge problem for some people.
Here are my concerns:
1. I think he may have some unconscious biases that may cause him to give me bad advice (well, maybe not *bad* -- just maybe not optimal). Example: In my first flare, I asked him about
exercise. His response was to tell me that I should definitely not do anything like cardio that speeds up the digestion. Over time, I've grown to believe that's wrong. It's also not completely clear to me that other lifestyle advice he has given me is actually medically true or whether it is reflective of his age & beliefs.
2. Following on that, I wonder whether he's really up to date on the latest info. I'm going to see him next week to ask about
Uceris and that will probably be the telling factor. I've been on Lialda since diagnosis and as far as I know, that's the latest mesalazine drug so it seems like he was at least pretty current with that (I guess).
3. I also am not perfectly sure that we communicate well. I am *positive* that he told me I needed to have a colonoscopy again last year and when I followed up with it, he kind of put me off until I really pressed him and then he said I don't need one for five to ten years after diagnosis unless there are other pressing reasons for it. Because I'm kind of arrogant about
being the most compliant patient in the universe, I feel like I heard him right the first time and he changed his mind or realized he had misspoken. That concerns me.
Maybe the best outcome is for me to have this community in order to find out about
VSL#3, and Uceris, and the possibility of gluten sensitivity or histamine, and alternative treatments such as fecal transplant. After all, he has yet to decline any request that I make (other than the additional colonoscopy, which I don't actually *want*).
Do you guys feel like having a GI who is well versed in everything about
UC is really helpful, or would you rather have someone like mine who you can control or push around?