i was diagnosed with UC in 97... Been in remission a few times through the years and in 07, crap hit the fan.. my disease spread so much so that I was diagnosed with Crohn's colitis and pancolitis - the entire length of my colon was all inflammed. Now.. It's 2013 and i've healed up A LOT, but can't seem to get the last part .. my rectum and anal canal to stop bleeding. I also have urgency all the time if I dont take imodium a few times a day.
So from 08 to now, all I do is research because I want to be healthy. I know so much about
UC and Crohn's and the treatments for them. If interested... check out my blog... OHH actually I have a great audio of Jini Patel that I blogged a while ago. It's very good. I'll post it after. So yes, I am a fan of Listen to your Gut and also a huge fan of Natasha Campbell McBride, the woman who greated the GAPS diet!! All i have to say is that the woman figured out what most people will never figure out. (She is a doctor of Neurology and maybe she has other degrees) but her son was diagnosed with autism and she noticed a connection between his behavior and what he ate. Most parents who have kids with a digestive problem will eliinate this or that food, but never really get to the bottom of the root issue, which Dr. Natasha was able to pinpoint.
Her theory is that the health of your gut flora/bacteria will determine your overall health. This is due to the fact that the majority of our immune system resides in our digestive system. If we heal our gut and keep it healthy, not only diseases like Crohn's or UC... but MS, RA, Fibromyalgia, all the autoimmue conditions pretty much will go away. I JUST listened to an audio the other day that I will post below so you can listen to how logical GAPS is. It's almost a no brainer when you hear her explain how our brain works and communicates to the rest of the body when something is "off" somewhere. Everything is connected.
I tried the hard drugs like 6mp (allergic) and Remicade (too strong and toxic for me). I didn't get much relief from either of those drugs... the benefits DEF didn't outweigh the risks for me. Plus due to my genes, i am not an appropriate candidate for either of those medications. SOOO.. that leaves me with limited options. I stay clear of dairy and gluten for sure... I also have to take calcium, b12, Iron infusions for anemia due to blood loss, D3 (I highly suggest it... it helps defend against cancer and reduce inflammation.. it's def one to add to the list), Vit K (kinda goes with the calcium and d3), PROBIOTICS... A MUST! Right now i'm on Culturelle and it hekps, but today i'm gonna make my own probiotic that is better than any pill and OMG... the cost isn't even comparable. (get cabbage, water, salt and a jar :) let it sit on the counter for 5 days & there you go...it's a GAPS necessity). I'm not a huge fan of sauerkraut, but i'll eat that stuff if it will make me better.
I always have to use the bathroom!!! so annoying. It has also killed my social life too..well that and just the disease itself effected my life in so many ways. This started years
ago. Imodium works! Take that with this homeopathic med - Pedophyllum Peltatum and they work well together. i was able to cut down on the imodium.
I have to run errands, but feel free to e-mail and we can connect and I can answer whatever questions you have or whatever. I like to help others and exchange ideas. Oh, and here is that link to that amazing audio. I think you will get a lot out of listening to it.
Listen to this.... Really good. http://ahhhhhihavecrohnsdisease.blogspot.com/2013/05/gaps-diet-natasha-campbell-mcbride.html#links
Im currently on Remicade and it is slowly working after 8 mths but I still can hardly leave the house so I am going back to basics and trying to rebuild my health naturally. I am interested if others have taken this approach? If so what supplements have worked for you?
I'm particularly interested to hear from those who have had UC for a very long time and had it quite severe (ie Hospital admissions, pooping pants constantly, fevers, heavy bleeding)..
Also has anyone read Listen to your Gut- by Jini Patel and followed her advice? And if so what do you think of it? What parts worked and didn't work for you and why do you think?