Wow... It has been too long since I've been here. I was browsing around and saw a lot of familiar usernames and just had to log on and say hi. I hope everyone is doing well. After flaring severely without remission from 1999-2009, I have been happy to be flare-free since then for the most part. For everyone who doesn't know me- I went through every med in the book, became steroid dependent and then that stopped working, and then FINALLY they got me on Remicade which is what finally put me in remission... I was on that from 2009-2011, and then I started having severe joint pain, to the point where some days I could barely move, and I started showing all sorts of weird symptoms so they ran blood work and I was positive for Lupus. After thinking a lot about
it, I stopped taking the Remicade in hopes the Lupus was only drug induced and would go away... And it seems to have! I haven't had a single Lupus-like symptom since discontinuing the Remicade... I also haven't had insurance in over a year so I haven't had followup blood work but oh well.
On the same note of being uninsured, I've also been completely unmedicated for over a year now... I'm always nervous about it, since it's my first time ever not taking meds for my colitis (and doing that before would have landed me in the hospital) but I've been doing okay. I do hot yoga 4 times a week and am pretty active in chasing my two year old daughter around, and I think that helps. I also try to avoid foods that could set me off, but not too much... I hate dieting, lol. I have had more bad days lately... No blood or anything, just the occasional "I feel like I'm drunk but I'm not, I'm just nauseous/dizzy and my stomach hurts" kind of feelings, and it doesn't last long. And I've been having a LOT of mouth ulcers, but that's always been something that's never really gone away for me. I have one right at the end of the roof of my mouth by my throat that is killing me right now!
I started thinking more about UC today because my dentist just prescribed me Amoxicillin 500mg 4x a day for 7 days to get this tooth abscess under control and I am a little worried about that... I am hoping it doesn't put me back in a flare :( I should be getting on health insurance finally this year but I don't know when yet, so I would prefer not to be sick without it! Just going to take my probiotics and hope for the best.
Anyway... Enough about me. Just wanted to stop in and give a little update and see how everyone is doing :) Happy Friday!