Nagelbitarn, I have Tenesmus as well and boy is it annoying.
As some of the others have said, Tenesmus does come and go based on how much active uc inflammation is present. So, when I am uc flaring it is much, much worse than when I am not and things are good. When I am feeling pretty good, uc wise, Tenesmus mostly goes away for most of the day. The exception is I tend to have that Tenesmus feeling for a few hours after waking up and then it usually goes away and I am fine for the rest of the day. I drive to work with that feeling, I just empty out best I can before leaving, and then I've learned to ignore that feeling on the drive. I just monitor that feeling and make sure it doesn't get worse during the morning commute, and if it does start a rumbling, gurgling, or otherwise start to sound worse on the commute then I stop at the nearest bathroom to play it safe. Pretty rare for me to stop during my commute, usually it is just a nuisance (I think of it is as a rather annoying head-game that uc plays with me). Usually by the time I finish my morning tea at work that feeling goes away.
That said, however, I occasionally have bad days where that Tenesmus feeling persists all day long. I just have learned to ignore it when that happens. And those days, I take precautions before leaving the house or otherwise being away from the toilet for a while. I just sit on the toilet to make sure I am truly empty before leaving, have a change in the car in case the worst case scenario happens haha.
I haven't found anything that helps,
35 yrs old; flare since 1/1/2013 w/3 daily bms;
Rx: Daily 75mg 6MP + 5g Lialda + 4g Rowasa + 30mg Prednisone
Diet: Diet mods and supplements haven't done a thing for me.
Last Scope: 4/30/2013 moderate/severe inflammation to 45cms
Dx: 2-2012 ulcerative proctosigmoiditis
"You, my friend, have never been in remission during the time I've known you; inflammation in every scope" - my GI
Post Edited (iPoop) : 5/28/2013 12:42:13 PM (GMT-6)