Finally off Pred :)

It's possible that seasonal diet changes are effecting your UC, such as possibly eating more fruits, veggies, etc. Something you may want to consider.

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Asacol 800mgs 1 pillsX3; VSL#3 112.5mgs 1 pillX2; Prescrip Assist Probiotic 1 pill X 2;Vitamin D3 5000 ius 1 pillX2;Bentyl;DAO;Folic acid

Discontinued: Robinul; Natural - peppermint oil, Inflaguard (Boswellia), Pepto Bismol, Omega 3 fish oil, Imodium, Beano, Lactaid;Zymactive, Renew Life Probiotic 80 billion, Florastor, DGL, Monolaurin, slippery elm;black cherry concentrate

good for you, and good luck..

I'm at 30mg now.. hoping to be off without issues by mid july and enjoy a pred free, symptom free summer...

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40yr old female
1st symptoms 2006, UC diagnosis 2007.
1st flare - 1 year. Solid remission with Mesalamine for 3 yrs.
2nd flare - 1 year (Jan 2010 til 2011). steroids (dependant -didn't work) Eventually 4.8g mezavant and 4g salofalk enema and sunflower/spinach got me into remission.
3rd flare - Mid-Aug 2012 – 6 good weeks in Dec/Jan but now battling round 2
Hospitalized April 16th 2013 - Mesalamine failing to work... still on 4.8g for now though, 60mg Solumedrol now droped to 40mg oral Prednisone (not responding either but need to wean) - 1st does REmicade april 26th, waiting to see if I respond.

yeah this time I took pred a lot longer than the other times. usually it was for 2 months max but this time around it was 5 months. it is an evil drug. I had teeth fillings that kept falling. I think I went to the dentist 4 times in the last 5 months for either fillings to redo or tooth being cracked. my face looks like a balloon!! right now im trying to do everything right so that I don't get a flare again. I just want a symptom free summer for once!! so far I think remicade is doing its job!

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- 27 year old female, Gatineau, Quebec

-diagnosed with UC june 2007 panacolitis
- imuran ( 50mg daily)
- Allopurinol (100mg) daily
- Prednisone finished 3rd of june :)

- 2 probiotics a day (ultime protec natural factors)

- 1 salofalk enema nightly

- just started Remicade Apr 2013. No more symptoms and crossing my fingers it stays that way!!

I just dropped my pred dose down to 20 mg today. Hoping it all goes well. My face is huge and I am tired of that. My Pred crazy level has at least gotten a bit better. I think my 3rd loading dose of Remicade is starting to work so hopefully I can get off of this Pred with no problems. Usually the sticking point is at the 10 mg point for me though.  I have no fillings so I am good there. I do have sensitivity in my teeth though when drink cold beverages. I never used to have that.

I am in the process of weaning off my Prednisone (have been taking since June, 2012). I am currently taking 15 mg; down to 10 mg next week and then a week of 5 mg and then adios. Hope it doesn't take too long to get rid of the extra facial hair that I have had to deal with since starting the stuff.

Unfortunately I was one of the unlucky people who failed to get any kind of remission with medical intervention including Remicade and I ended up having an urgent Sub-Total Colectomy. No need to tell you what that means. I was extremely sick and weak just prior to surgery as my electrolytes were all messed up. Basically the surgery saved my life. I am almost 6 weeks post-op now and feel better [physically] than I have in over a year. Mentally, I am still trying to be in denial regarding the ostomy. I realize that it is a small price to pay for my life and my health but I am really self conscious whenever I am in public and I loathe the thought of having to [empty] care for the pouch in a public washroom. I am also afraid of having a [messy] accident while in public. I suppose over time I will gain some confidence and get used to the life change but right now I am still depressed about it. I joke with friends and they all think I am adapting well but on private it is another story.

Since I no longer have a diagnosis of UC, I should be thankful.

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Live every day like it is your last; one day you will be right.
Diagnosed - 2012
Prednisone (currently 25 mg - tapering from 60 mg)
Remicade (2 infusions, 1 in another week and then every 8 weeks)

cyn...while you were on the pred and weaning....were you on the nightly enemas?

Congratulations for now being off it....you still do need to deal with what's going on now.

You could ask the doc to add a steroid low dosage rectal med to use in conjunction.

Are you also on an oral 5ASA?

How about fibre supplements?

Wishing you a good summer!
q

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*Heather* I give suggestions, do with them what you will.
Status: ...Asacol 3 @ 2x daily; Salofalk enema @ 3rd night (nightly/ flares, tapered/maintenance)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol 20mg as needed; Zantac 150mg; Pulmicort/Airomir (asthma);Effexor XR 37.5 (depression)
~vitamins/minerals/supplements; Probiotics....(RenewLife Ultimate Flora Critical Care+Primadophilus Reuteri capsules @ bedtime)
~Metamucil capsules 6 twice daily with meals; Vitamin D 4500 IU
~URSO for PBC(or PSC?) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!

Hope you're able to feel better soon...I'd suggest the enemas nightly, however.

q

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*Heather* I give suggestions, do with them what you will.
Status: ...Asacol 3 @ 2x daily; Salofalk enema @ 3rd night (nightly/ flares, tapered/maintenance)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol 20mg as needed; Zantac 150mg; Pulmicort/Airomir (asthma);Effexor XR 37.5 (depression)
~vitamins/minerals/supplements; Probiotics....(RenewLife Ultimate Flora Critical Care+Primadophilus Reuteri capsules @ bedtime)
~Metamucil capsules 6 twice daily with meals; Vitamin D 4500 IU
~URSO for PBC(or PSC?) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!