Old Hat said...
Sorry you're dealing with a setback, Keith. I hope it resolves soon. Can you get your test results via Cornell Connect now? BTW, I found out what Dr. St will be directing there, interesting. He's on LinkedIn! (Seems that he's heavily into football as a side.) / Old Hat (32 yrs with left-sided UC; presently in remission taking brandname Colazal)
I am feeling much better the last 2 days; I took a shot of Golimumab over the weekend and along with the 60mgs of Predisone and things are starting to be much better (total brain fog from the Predisone and the flare). I'm thinking about
taking Thursday and Friday off of work just to get some energy back and clear my head.
The flare was so bad last week that Dr S. recommended that I consider going into the hospital for Cyclosporine or IV Steroids....I declined because I wanted to see how the next shot of Golimumab was going to work for me (thankfully things are improving rapidly). I really don't want to go back into the hospital unless it is for surgery, it seems pointless to me to continue this way.
Dr. S recommend a surgeon at the NYP Cornell IBD Center to me but the surgeon doesn't accept my BCBS insurance so I am switching to Oxford this week but that will take about
45 days to go through before my new insurance is in effect. The surgeon has great credentials but I'd like to meet him and see if like him, his rates are $700 an office visit so I'll let my new insurance company pay for it.
I really liked his new office and the Jill Roberts center, it is very well run and efficient but at the same time very relaxing. The best thing is that he now accepts insurance so all I have to pay is a co-pay for his visit and not pay 100% out of pocket for his office visits.
Right now I don't have too many options, I've gone through all the available medications except for Cimzia (which I am not too interested in) and I really don't want to use a clinical trial medication so it looks like surgery will be my outcome sooner then later (I'm actually looking forward to it)....I'd like to get off the Predisone first before the surgery and hopefully the Golimumab will allow me to do that.