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Forum Home| Forum Rules| Moderators| Active Topics| Help| Log In

Has anyone gone bald?

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Ulcerative Colitis
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Petah
Veteran Member
Joined : Nov 2012
Posts : 1206
Posted 6/21/2013 5:53 AM (GMT -7)
From medication, Seriously don't want to lose anymore of my once long thick hair. I never noticed it until I changed from supps to enema
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Jonny_Murray
Regular Member
Joined : May 2013
Posts : 271
Posted 6/21/2013 6:09 AM (GMT -7)
I have recently started aza and was worried about hair loss but so far I've not noticed anything.

http://www.ehealthme.com/ds/azathioprine/hair+loss

I found this survey online. Of 13,266 people taking aza only 113 (0.85%) reported hair loss and of that 113, 85% were women. The odds are in my favor!
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Petah
Veteran Member
Joined : Nov 2012
Posts : 1206
Posted 6/21/2013 6:32 AM (GMT -7)
Ive been on pentasa for years and didn't notice until I changed to enemas
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Petah
Veteran Member
Joined : Nov 2012
Posts : 1206
Posted 6/21/2013 6:34 AM (GMT -7)
Thinking of going back to supps, results of fecal calprotectin showed no improvement or change since switching to enema anyway.
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MNBeachgal
Veteran Member
Joined : Jun 2008
Posts : 900
Posted 6/21/2013 7:35 AM (GMT -7)
I've been on Asacol, then Colazal, for the past 15 years.  I started losing my super thick hair over 10 years ago.  I'd say I lost 3/4 of my hair at that time.  My hair is now very thin, but still very long. So it never grows back to the thick hair you once had I'm sorry to say, but it hasn't all fallen out.  Also the hair loss stops at some point and your hair just stays thin.  For me, the hairloss picks back up whenever I have signifcant stress in my life.

I've been tapering off Prednisone (which I've been on for over a year now) and that has really made the hairloss pick up.  It's as bad as it was when it first started falling out except this time I don't have much hair to lose! I'm hoping it stops soon and I won't be going on Prednisone again that's for sure!

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Charlie3
Regular Member
Joined : May 2013
Posts : 293
Posted 6/21/2013 9:48 AM (GMT -7)
80yr old grand mom. dX UC 10 months ago I think P rednisone caused my hair loss I was on every drug out there nothing worked even 2doses of remicade I now wear a wig it looks so real grey like I used to have friends &family say so hey I save $$no more weekly trips to the hairdresser turn
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Charlie3
Regular Member
Joined : May 2013
Posts : 293
Posted 6/21/2013 10:03 AM (GMT -7)
Whoops I forgot to say I am now on humira every 2 weeks 80 yr old grand mom
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colitis91895
Regular Member
Joined : Feb 2013
Posts : 275
Posted 6/21/2013 10:28 AM (GMT -7)
I noticed my hair falling out after starting remicade. After my 2nd infusion, I noticed when i took a bath that the tub was full of my hair.
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wodin
Veteran Member
Joined : Jul 2009
Posts : 530
Posted 6/21/2013 10:43 AM (GMT -7)
I thinned out considerably from the pred during my last flare. I asked my PCP if it would come back, and she just sort of avoided the question. :(

I used to tease my brothers who inherited my maternal grandfather's hairline, had to stop doing that.
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notsosicklygirl
Forum Moderator
Joined : Dec 2008
Posts : 17745
Posted 6/21/2013 4:37 PM (GMT -7)
I have been losing a ton of hair lately. I have like three heads of hair though so it's not noticeable. I think it comes and goes. It will probably fill out before you know it.
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mattcs
Regular Member
Joined : Oct 2012
Posts : 127
Posted 6/21/2013 4:39 PM (GMT -7)
Male, late 20s, was already balding, my rheummy reminded me I'm not allowed to complain about losing my hair b/c I already was. He's lucky I wasn't in a bad mood.
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Petah
Veteran Member
Joined : Nov 2012
Posts : 1206
Posted 6/21/2013 5:34 PM (GMT -7)
Anyone not losing hair :(
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Gonk
Veteran Member
Joined : Jan 2012
Posts : 600
Posted 6/21/2013 5:58 PM (GMT -7)
My hair started thinning when I started taking Asacol 10+ years ago. Was it the Asacol or just that I was getting to that age where we start thinning? I don't know, but my brother still has a great thick head of hair and he's 4 years older than me!
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dybeye
Regular Member
Joined : May 2013
Posts : 235
Posted 6/21/2013 6:04 PM (GMT -7)
My hair is thinning from all the meds. My GI put me on prescription strength Folic Acid. He said that will help but I don't know how long that wait will be.
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Pluot
Veteran Member
Joined : May 2012
Posts : 2500
Posted 6/21/2013 8:53 PM (GMT -7)
My hair was 100% fine and unaffected through all of the meds listed in my signature. It started to thin after surgery, which is a common side effect of general anesthesia (telogen effluvium -- happens to everyone, has nothing to do with IBD or meds). Even so, I've had two major surgeries in the past five months and everyone tells me they can't see a difference in my hair. I can tell and definitely see more hair in the drain after a shower, but I haven't needed to do anything special (like cut my hair, style it differently, etc).
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Petah
Veteran Member
Joined : Nov 2012
Posts : 1206
Posted 6/22/2013 12:17 AM (GMT -7)
Mine only started on enema's not supps
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ks1905
Veteran Member
Joined : Sep 2005
Posts : 5857
Posted 6/22/2013 4:59 AM (GMT -7)
During my first flare (which was very severe) I lost a good amount of hair but all of my hair came back once I got healthy. I was so malnourished that you could even feel my fingernails and see where they slowed their growth and were very thin...I think that hair and nails are made from the same protein (keratin) and b-12 is very important for healthy hair and nails but with UC B-12 can be difficult to absorb because of the inflammation in lower part of the colon. All the meds that we take doesn't help either.

The flare that I am currently in is not that bad and I am staying nourished. Actually my hair feels extremely healthy and soft (like when I was a kid), last year I started using Bumble and Bumble Gentle Shampoo and their SuperRich Conditioner...their stuff is ridiculously priced but my hair is in great shape now.
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Petah
Veteran Member
Joined : Nov 2012
Posts : 1206
Posted 6/22/2013 5:33 AM (GMT -7)
I'm glad to hear it comes back :(
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