Posted 7/17/2013 1:47 PM (GMT -7)
I never had any pre-meds at my remicade infusions either. I was always pretty alert and watched who wants to be a millionaire at all my infusions.
as for lialda, I personally wouldn't stay on it if it hasn't been working. just one other drug you are putting into your body.
I took a few things along with remicade though so I will never know what actually worked- canasa, prednisone, 6mp, cipro/flagyl, Prilosec, and Zofran. I have a feeling 6mp played the biggest role in my remission just because when I had to stop it, I felt terrible again even though I still had remicade infusions.
2-4 bms/day. c diff since jan 2013. last 2 tests were negative
current: vit D, l-glutamine, benebiotics, vsl, bac. coagulans, iron, sod. butyrate
Diet: paleo-meat, coconut oil, kefir/yogurt, fruit/veg
previous: canasa, rowasa, entocort, pred, 6mp, remicade, humira, lialda, welchol, bentyl, LDN, cipro, flagyl, vanco, Vit E, 8 FT, clay, aloe, slip. elm, ivig, ferrlicet, venofer, b-12 shots