6mp, Remicade or Humera..... whats your experience?

Remicade brought me relief after decades of suffering. I'm a fan.

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53 year old female attorney, diagnosed UC/pancolitis 1985.
Asacol for 20+ years with Prednisone & Rowasa for flares (But nothing since Remicade). Food sensitivity test by Naturopath showed wheat/gluten, other intolerances, helped some.
Remicade started April 2009 (Humira denied) and doing great~ learning what normal is~ wow
2013 Traveled solo around the world, just because Now I Can.

long story short- 6mp and remicade = good. humira = VERY BAD.

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Joanna, 23
current: 45 mg prednisone, 50 mg Imuran, 54 mg iron, 10,000 iu vit D, VSL, culturelle, benebiotics, l-glutamine, collagen
diet: scd/paleo aug 2012- lots of meat and fermented foods (kefir, sauerkraut), little fiber, avocados, oils.
goal: be healthy no matter what it takes.

I'm on Remicade currently and it's a god send. I also take Asacol HD just to be sure to keep it in check. No adverse side effects but I did have minor knee pain. It went away once I finished the infusion.

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21 year old female diagnosed with UC 08/2011.
Asacol EC 800mg, Iron 45mg, & Remicade.
Remission for most part, minor flare — Entocort 3g

95% mostly vegetarian diet, 5% meat.
(currently in transition to become a vegetarian)

6MP + Remicade works for me. After an 18 month flare, they got me into remission, although I also needed some hydrocortisone enemas to tamp down the inflammation temporarily. No enemas since July, though, and feeling amazing. Full symptomatic remission.

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27yo female, moderate to severe pancolitis (DX 10/07)
Flares: 8/07-12/07, 7/10-1/11, 2/12-7/13
6MP (50mg/day), Remicade (10mg/kg every 6 weeks), hydrocortisone enemas when needed
Remission since 7/13

I'm a Remicade success story. I was on azathioprine (related to 6-MP) and it did nothing for me. Read my siggy for the details.

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Ulcerative colitis diagnosed in 2001; symptoms as early as 1992. Currently in 7th year of remission with Remicade.
Inflammatory osteoarthritis; osteonecrosis from steroids
Grave's disease successfully treated with radioactive iodine and now on Levothyroxine.
Type II diabetes induced by steroids.
Meds: Remicade, Colazal, Levothyroxine, Mobic, Metformin

Moderator, thyroid forum

6mp and Remicade didn't work for me. (tried cyclosporine too) By that time I was REALLY sick and fed up so I didn't bother with the Humira. I had surgery instead. These drugs work for some and not for others so if you are willing to try them, go for it. Hope something works out for you.

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Marianne

DX Pancolitis in 2005. Family history of UC.
Tried every drug-even Remicade & Cyclosporine (nasty!)-Tried diets-nothing worked-wanted my life back!
Step 1: J-pouch surgery (Laparoscopic restorative proctocolectomy w/ temporary diverting loop ileostomy) 6-25-10
Step 2: Take down surgery (Ileostomy reversal) 10/8/10
No more UC and no more drugs!! Very happy j-poucher!! :)

I love Remicade.

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Diagnosed Ulcerative Colitis 09/07. Took more than a year to finally get things "under control"

Had bad reactions to 5-ASA's and 6MP.
(Continued/Worsened symptoms)

Took prednisone for over a year.
(Was the only thing that worked)

Now on Remicade and a low fiber diet.
REMISSION!

Yes, thanks so much -- It really helps to read other people's experiences. My doctor has more or less recommended Remicade but if I feel strongly about it he's okay with 6mp. The more I read about them, the more I'm inclined to go with Remicade. I don't know much about science, but the biologics make more sense to me than the immunomodulators.

My boss (who is really a great boss but is totally like a child wrt UC, which he was diagnosed with in February), upon hearing that I'll probably start Remicade soon, said, "But once you start it, that's it, you have to stay on it forever!!" Panic panic. I was like, no dude, when it stops working for people they stop taking it. He said, "No, you have to stay on it forever!" And I said, like what, like being on 5asa's forever? I don't get the panic. Are any of us told by any of our doctors that we'll ever stop taking meds?

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dx 4/09 (1 week before breast cancer dx) with mild to moderate UC through mid-transverse colon
4.8 g Lialda; cortisone enemas as needed
Konsyl; RenewLife Ultimate Flora 80 bln; L-Glutamine; Florastor
Gluten free since 8/12 + in remission since 9/12
5/8/13 ate gluten & began flare
Prednisone 6/4 - 60 mg to 9/3 - 0 mg; entocort 3 mg 2x daily beginning 8/16/13