There isn't as much of a correlation between appearance in scope/pathology and severity of symptoms as people think. Every time I've been scoped the GI has always said "Wow, your colon looks better than I thought it would!" Doesn't change the fact that I was incontinent, unable to work, lost 40 lb, etc.
I would also say that a lot of GIs don't see IBD cases that often. I wouldn't be surprised if his GI really had never seen a worse colon... but that it wasn't that bad.
And finally, in my experience GIs and surgeons massage what they tell us more than we realize. Some patients like to hear that our colons look "really bad" or "I don't know how you survive with that thing in you!" or "your colon fell apart in my hands when I took it out!" crap like that. You see people quote it all over here and other forums because... we feel like crap and we like to hear that it's physically justified. Conversely, doctors will tell you things like "This is the nicest stoma I've ever seen, " "this is one of the best constructed j-pouches I've seen," etc (sorry my examples are surgical... no one ever said anything nice about
my colon). Patients like to be superlatives and doctors are usually more than willing to fudge the truth and tell us so.
PS - Last thing: steroids are powerful but it looks like he is on 6MP, a powerful immunomodulator, and you are not. You might could be in complete remission on 6MP too.
dx'ed UC pancolitis 5/12
past meds: asacol hd, VSL#3, apriso, rowasa, xifaxan, 6mp, cortifoam, pentasa, cimzia, canasa, butyrate, flagyl, cipro, prednisone, remicade, methotrexate, cholestyramine, cortenema
current meds: none!
step one: colectomy, end ileo 1/16/13
step two: j-pouch construction, loop ileo 5/1/13
step three: takedown 7/31/13