I totally agree. In some ways I am thankful that my UC was as bad as it was. I know that sounds crazy, but surgery was an "easy" decision for me because of how severe my disease was. If it were a little milder I might have held out for much longer, suffered more, wasted more time. If I had to have UC and if it had to be a case that wasn't easily treatable, I'm glad it was bad enough for me to go straight to surgery and get it over with.
As for dehydration, I do think about
hydrating more than most people probably do (I try to have a drink with me at all times, more or less), but I don't have "dehydration problems." I haven't needed to be hospitalized or anything like that, and I'm able to work out without issues. I drink a lot of water, and sometimes, if I've had a lot of coffee or been sweating a lot, I'll drink diluted Gatorade. As for malnutrition, I have no problem absorbing calories (as opposed to when I had my colon and couldn't stop losing weight, even eating 4000 calories per day). My Vitamin D and B12 levels are currently low, but we don't know yet if that's from being sick so long or if it will be a longterm thing with my j-pouch. I take supplements of each and it's fine.
dx'ed UC pancolitis 5/12
past meds: asacol hd, VSL#3, apriso, rowasa, xifaxan, 6mp, cortifoam, pentasa, cimzia, canasa, butyrate, flagyl, cipro, prednisone, remicade, methotrexate, cholestyramine, cortenema
current meds: none!
step one: colectomy, end ileo 1/16/13
step two: j-pouch construction, loop ileo 5/1/13
step three: takedown 7/31/13