Posted 10/21/2013 9:58 AM (GMT -6)
I'm getting my 3rd Remicade infusion this Friday. I noticed a big change right after my first one, but it has since slowed down. I am still headed in the right direction, it just seems the last part takes longer. My GI told me only 10% of people with UC had it as bad as me, he was kind of shocked when he did the colonoscopy and saw how bad it was. He told me it would take a few months before I would heal from this because there was so much damage. My goal is to be healed by the end of the year.
As for the steroids, I was started on 40 mg, been on it for 1.5 months, just tapered down to 20 mg. When I was on 40 mg, I suffered insomnia, huge appetite, acne and night sweats. Now that I'm down to 20, the night sweats have lessened and I am able to sleep more. The acne has decreased and so has my appetite. Hoping to fully get off of it soon.
Severe UC, 75% of colon, Aug 2013 (30 years old)
Remicade 10mg/kg - 4 Week interval, Asacol HD 800 mg - 1 tab 3 x day, Prednisone 10 mg - 2 tabs 1 x day (Tapering), Azathioprine 50 mg - 1 tab 2 x day, Pantoprazole 40 mg - 1 tab 1 x day, Vicodin 7.5-750 mg/Tramadol 50 mg - As needed, Ultimate Flora Critical Care 50 Billion 10 Probiotic Strains, Nature's Way Alive! Multi-Vitamin/Mineral
Lialda - Stopped due to bad reaction (Severe Joint/Muscle Pain), Ferrous Sulfate - Stopped due to bad reaction (Cramping), Delzicol - Took while in the hospital, Flagyl - Took while in the hospital, Cipro - Took while in the hospital