I'm Kal, I don't have UC but my partner does, he was diagnosed with it a little over a year ago. This may get rather TMI for some, sorry about
I'm looking for advice, I suppose. We need to know if it's normal.
My partner has flare ups quite often. His doctor told him that his obsessive drinking of soda is what bought UC to him, not sure how true that is but there you go.
When he has flare ups, he becomes a horrible person, short tempered and generally unpleasant to be around (grumpy). His eyes get stabbing pains, his joints hurt and ache and his heart goes all "weird" on him.
He is currently at a BMI of 16. We don't know how to make him put on weight.
He has bottles of something called Balsalazide Disodium in capsule form, his doctor told him to take it all the time however, when he was flaring he is to self medicate as needed (up or lower the dosage depending on how he felt), unfortunately, and as much as I love my partner.. he is an idiot and will take a stupid dose (like 5 - 7) at a time, he does not take them at any other time. Just 1 large dose per day when flaring. (Upon rereading that I realize how mean that must come across. I don't mean it as such, it's just very frustrating watching him take his medication like that when his doctor made it quite clear he had to introduce it slowly and stop it slowly).
He hasn't had a solid BM for years. He can't remember the last time. It's gotten to the point now where he no longer wants to attend tae kwon do in case he has an accident.
I guess what I'm asking is.. is this normal for this disease? he's in Australia with me now, not the US so.. should we see a new doctor? is there more he can do for his issue? would him drinking water instead of soda or sugar laden drinks make any difference?
He and I are both at a loss here and just need some friendly advice.
Sorry this was so long D:
Edit: I just remembered, that he also gets... constipation and diarrhea.. at the same time. So, he has diarrhea, but he can't get it out, sometimes it can take all day.
Post Edited (Kalith) : 12/14/2013 7:18:44 AM (GMT-7)