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toomuchpoopin
Veteran Member


Date Joined Dec 2013
Total Posts : 1211
   Posted 12/18/2013 11:03 AM (GMT -7)   
One thing that still has me, and my doctors confused is my normal blood test results. My results always come in normal. At most I have slightly elevated white blood count, but nothing major, yet the inflammation etc., was highly visible upon colonoscopy. Any ideas? Ever heard of this happening? Anyone else have normal blood yet flaring?
Meds:Asacol800 three pills/daily. Salofalk suppository daily, Salofalk enema nightly. Supplements: Probiotic, fiber pills (just started). Diet: modified Paleo. Nothing processed etc., but do include white rice, potatoes, and occasional white bread.
Diagnosis:First Colonoscopy (dec2013)showed inflammation/ulcers but biopsy had no markers, so no IBD officially diagnosed. IBS-D for 10+ years

garylouisville
Veteran Member


Date Joined Aug 2012
Total Posts : 9088
   Posted 12/18/2013 11:12 AM (GMT -7)   
It depends on what kind of a blood test was actually done. In most cases, a regular CBC probably isn't going to show anything abnormal. I'm not sure what kind of test shows inflammation markers but I don't think a CBC will show that. Do you know what kind of a test or tests you were given?
Lialda 1 pillX2; VSL 1 pillX2; Prescrip Assist Probiotic 1 pill X 2;Vitamin D3;Folic acid; Claritin; Canasa 3 X week;Levsin&DAO as needed

Discontinued: Robinul; Natural - peppermint oil, Inflaguard (Boswellia), Pepto Bismol, Omega 3 fish oil, Imodium, Beano, Lactaid;Zymactive, Renew Life Probiotic 80 billion, Florastor, DGL, Monolaurin, slippery elm;black cherry concentrate;CCHerbal

TroubledTurds
Veteran Member


Date Joined Jan 2004
Total Posts : 8038
   Posted 12/18/2013 11:44 AM (GMT -7)   
a crp test with detect inflammation - it's not normally part of a cbc -

but if you been dx'd with uc, and you are still having symptoms, you most likely have inflammation -

hmmm, ok , I reread your post and see you don't have a dx for uc - still, if you haven't had a crp, at least that would confirm the inflammation and regardless of whether you have an official dx, you should still be dealing with any inflammation -

Post Edited (soystud) : 12/18/2013 11:49:34 AM (GMT-7)


sheree18
Regular Member


Date Joined Aug 2010
Total Posts : 157
   Posted 12/19/2013 1:10 AM (GMT -7)   
Yes this has happened to me many times.. I have been in a bad flare, had a colonoscopy been told its the worst they have ever seen but had normal crp levels. I had 6 doctors baffled in April because of this. They have come to the conclusion that the immune suppressants I am on are the reason it is not showing up.
The other conclusion they came up with was it was not my uc but a very bad bowel infection...

I have also got them baffled over my uc. Many times my uc has presented itself in patches which they have told me is very unusual that uc normally is continuous..
I have had many biopsies to make sure its uc and each time it is confirmed...
Every time I have a flare I present with strange symptoms so now the doctors at my hospital are use to it lol!

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 15430
   Posted 12/19/2013 7:56 AM (GMT -7)   
I always had normal blood work, especially before 6mp. While getting going on 6mp, I had very odd blood. I don't think blood work always indicates what's going on with UC.
Co-moderator: Ulcerative Colitis
Diagnosed with Pancolitis, Laryngopharyngeal Reflux & Migraines. Battling Extreme Exhaustion.
Currently: 6mp (25mg) + Lialda (2400mg) + Canasa (1g PM)

MossPiglet
Regular Member


Date Joined May 2013
Total Posts : 183
   Posted 12/19/2013 8:23 AM (GMT -7)   
I have had many normal blood tests (well, often borderline anemic) and CRP normal, but still flaring. I have been on Imuran for 17 years though, and with my initial dx my white cell count was through the roof! I also- though only once- had patchy areas, which puzzled my GI as well. Latest scope though showed continuous starting from rectum. Negative for C diff, shigella, E coli and others. It's interesting, though. I still think there are not just 2 diseases here: "UC" and "Crohns" The validity of CRP tests for UC has been debated: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1856093/
UC, 17 years, dx age 33
was on Asacol just switched to Apriso
and 50 mg Imuran
Canasa now as had flare
have been on prednisone, Rowasa and hydrocortisone enemas
probiotics via homemade yougurt of: culturelle, Sacc boulardi, Primadophilus reuteri
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