I have never been this sick for this long. It's been severe for 4 months now and I feel like no one cares how it is affecting me and my quality of life. My primary just kept telling me to go to the ER but last time I did that I was there for a week and was treated horribly and not helped at all. I finally paid out of pocket to go to the gastro who did my clinical trial and was told that I am failing medical the repairs but that the next steps are extremely expensive and he just sent me home with more meds. Including uceris which usually works to stop a flare but it had no affect. This was 2 months ago.
I am seeing a new gastro (which has taken 3 months to get a "10 minute" appointment) on January 15 who is within my county insurance and I'm putting all my bets on him. I think if he wants me to get tests or new therapies then it will be covered. I'm assuming my next move will be humeria or remicaid....or surgery. I have ever considered surgery in the 8+ years I've suffered but at this point it is a real thought.
I have bleeding and mucus daily, in the bathroom up to 20x a day. Afraid to leave house and if I have to I don't eat. Within the first month I had lost 22 pounds. I am also in a lot of pain all the time and the tramadol they give me no longer does anything.
Ideas or suggestions? I don't know what I should ask this new doc for.
27 years old- female
Diagnosed with left-sided UC June 2005
First colonoscopy December 30, 2008- dx'd with Pancolitis
Asacol HD, Uceris during clinical trial and twice since, Zoloft, Wellbutrin, prednisone, mesalamine enemas, Cortifoam, Sulfasalazine, Cipro, Flagyl, Codine, Hydrocodone, Roxicodone, Canasa, Aloe Vera Juice
Lialda 3.6 grams, Bentyl 30 mg
Post Edited (Samynic) : 1/2/2014 10:39:40 AM (GMT-7)