I had my surgery about
10 months ago, but instead of getting a J pouch, I opted for a permanent ileostomy. I felt SO much better the minute I woke up from surgery and have been nothing but happy with the results. I eat what I want, do what I want and am healthy again!!
(Edit) Oh yeah....I forgot to answer the rest of the questions!
I chose surgery for a couple reasons. During my last flare I got VERY sick VERY fast. Lost weight like crazy, couldn't eat, couldn't sleep, was going 15-30 times a day, soiling myself, wearing diapers...all the fun stuff. Had it not been for a VERY understanding workplace, I couldn't have kept on working, and still missed a day or so every week. Had it not been for my Mom coming to stay with me, I couldn't have kept caring for myself, my house, my dogs. Prednisone did nothing to ease my symptoms...enemas didn't help, cutting things from my diet didn't help, Remicade didn't help. Pretty much, I was dying and surgery seemed like a GREAT option!! Thing is, I also thought like you. Even if the meds had worked, I knew I wouldn't want to live in fear of the next flare, waiting for the shoe to drop, wondering when I would get that sick and have to go through that all over again.
DX:6/12 Mild UP:got/kept remission w/1 Canasa nightly
MAJOR Flare began end of 11/12
Flex Sig 12/14/12:UC,mod/severe left side
Flex Sig 2/4/13:UC Severe into transverse colon
Prednisone refractory,little to no relief from enemas or Remicade
Proctocolectomy w/end ileostomy 3/13/13
Pathology showed Severe Chronic UC into right colon
Finally off Pred as of 4/24/13
So far my new,healthy life is GREAT!
Post Edited (UCwhat?) : 1/6/2014 1:47:20 PM (GMT-7)