The strictures are scar tissue. She had to dilate them to get her scope through. She could not dilate them more, because they are also actively ulcerated areas with friable tissue between them. Strictureplasty usually does not work in the colon, but is not an option for me because they are so low and I'd need a diverting osteomy anyway.
They have to come out because I am going to either obstruct or get cancer. She said I could wait if I want to, but cancer screening is going to be very tedious.
She threw a huge wrench in the works today. I have a new surgical option of a resection. I have not talked to the surgeon, but it sounds like it would be low anterior resection with coloanal anastomosis (LAR/CAA), which is basically a cancer surgery. I could remove the strictures and associated cancer risk, but I'd still have to take medicine for the rest of my life. I may or may not have to stay on Remicade, but I would always need something.
I would lose the option of a j-pouch forever if I took this route.
I am really, really overwhelmed today.
Ulcerative colitis / 36 / female
Allopurinol - 100 mg
Imuran – 50 mg M - F / 25 mg weekends
Remicade - 7.5 mg / kg @ 8 weeks
Nothing left to lose but my colon.
Post Edited (Tornado6) : 2/4/2014 4:53:24 PM (GMT-7)