Peety, Wow, no preemptive bathroom visits; that's great! How many infusions do you think it took for you to really feel good?
Canadagal, I am actually not doing too bad lately. I tried taking VSL #3 DS and it really messed me up; enough to where I was miserable in the mornings. Once I stopped that and started back on cortifoam things are improving.I will check on a double dose of remicade if things get bad though.
Minners, it sounds like we are in the same place regarding the time we have both been on remicade. As I mentioned, I am supplementing with cortifoam and that seems to be helping. I think the key is to keep an eye on things and not assume the the remicade is all we need.it sounds like you are also doing the same thing with the re-introduction of enemas. Hope it works for you.
1st diagnosed UC in 2008
Current meds:Remicade 5mg/kg every 7 weeks, Asacol HD 6 a day
Supplements: 6000iu vitamin C, B complex, Renew Life Critical Colon 80B, VSL#3 DS 1 packet day
Previous meds & supplements: Pentasa, Canasa,Uceris, Cortifoam, Mesalamine enemas,psyllium seed powder, 1g tumeric, L glutamine 2tsp
Post Edited (Lr21) : 5/24/2014 8:38:55 PM (GMT-6)