Peety, Wow, no preemptive bathroom visits; that's great! How many infusions do you think it took for you to really feel good?
Canadagal, I am actually not doing too bad lately. I tried taking VSL #3 DS and it really messed me up; enough to where I was miserable in the mornings. Once I stopped that and started back on cortifoam things are improving.I will check on a double dose of remicade if things get bad though.
Minners, it sounds like we are in the same place regarding the time we have both been on remicade. As I mentioned, I am supplementing with cortifoam and that seems to be helping. I think the key is to keep an eye on things and not assume the the remicade is all we need.it sounds like you are also doing the same thing with the re-introduction of enemas. Hope it works for you.
I noticed a difference after the first infusion. On May 19, 2009, I did not need to poo that day for the first time in more than 20 years.
53 year old female attorney, diagnosed UC/pancolitis 1985.
Asacol for 20+ years with Prednisone & Rowasa for flares (But nothing since Remicade). Food sensitivity test by Naturopath showed wheat/gluten, other intolerances, helped some.
Remicade started April 2009 (Humira denied) and doing great~ learning what normal is~ wow
2013 Traveled solo around the world, just because Now I Can.