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Can someone help me understand my colonoscopy?

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Ulcerative Colitis
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nightside of eden
Veteran Member
Joined : Sep 2009
Posts : 552
Posted 2/23/2014 7:11 AM (GMT -8)
I have had UC for 17 years, been on pretty much everything! I don't really care for my new doctor because he fails to answer a lot of my questions and has trouble making up his mind about what to give! He always reverts to cortenema, sulfasalazine and Pred. Anyway, I always ask for canasa or other suppositories and he always just gives cortenema. My flare is mild at the moment but I can never get in remission. Anyone have advice on what I should ask for after these results, because we constantly go through the same cycle


-moderate UC, involving rectum, with transition point at 25 cm
-normal cecum, terminal ileum, ascending, proximal tranverse, distal, descending, and sigmoid colon
-moderately severe UC found in the recto sigmoid junction and rectum, 25 cm from entry site.


Wouldn't canasa help?
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NiceCupOfTea
Elite Member
Joined : Jan 2010
Posts : 11145
Posted 2/23/2014 7:21 AM (GMT -8)
There's not a lot there to understand. Everything from the terminal ileum to the sigmoid colon is reported as normal, with moderate UC in the rectum. I presume transition point means where the UC starts, but am not sure.

I know your doctor is new, but if he refuses to listen to you I would consider finding an even newer doctor. If the same old meds aren't working, then it's madness to keep on trying them over and over again.
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TroubledTurds
Veteran Member
Joined : Jan 2004
Posts : 8717
Posted 2/23/2014 7:22 AM (GMT -8)
well you probably need to be on some sort of butt med -

and if telling him what you want isn't working, time to get another doc -
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iPoop
Forum Moderator
Joined : Aug 2012
Posts : 16416
Posted 2/23/2014 7:38 AM (GMT -8)
Ditto on finding a new GI who will listen to you and try new treatments. If you are stuck in a rut then it's time to mix things up a bit.

I would ask for meslamine-based enemas (a.k.a rowasa), as they go further than canasa and have much more active ingredient than canasa does. Not sure canasa would go the distance, in this case 25cms. No doubt the enemas would. Try the enemas daily for a month or so and if that doesn't significantly improve your symptoms then I'd move up the medicine ladder and try an immunosuppressive med (6mp, imuran, aza). Good luck.
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ByeByeUC
Veteran Member
Joined : Feb 2011
Posts : 4592
Posted 2/23/2014 8:02 AM (GMT -8)
I was on Rowasa enemas at one time. They actually gave me a bit of relief. (was short lived but I had severe inflammation.) They may be the ticket for you....try them.
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imagardener2
Veteran Member
Joined : Jan 2010
Posts : 5896
Posted 2/23/2014 8:34 AM (GMT -8)
I don't think staying on cortenema is recommended because it can cause thinning of that layer of rectum with long-term use. Better to use melamine enemas long-term, few side effects (unless you are allergic to melamine) and much better than suppositories (Canasa) because enemas treat a larger area.

Canasa could be used when you have no symptoms but really try and get non-steroid enemas. Push hard to get them and use them.

If you cannot get mesalamine enema Rx from this GI then get a different GI.
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notsosicklygirl
Forum Moderator
Joined : Dec 2008
Posts : 17869
Posted 2/23/2014 8:45 AM (GMT -8)
I would try canasa but it doesn't go very far into the rectum, only a couple inches. It's good for the end but probably won't help as much as an enema. I use it in the morning and i've been using cortenemas at night with okay results.
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jujub
Elite Member
Joined : Mar 2003
Posts : 10424
Posted 2/23/2014 9:07 AM (GMT -8)
I agree with everyone else. A mesalamine enema should be what will address your specific problem the best. It's available in generic, if cost is an issue. (Some HMO's frown on brand-name Rowasa because of the cost.) If your doctor won't prescribe this for you to try, I'd consider looking around for another doctor again. After all, neither you or he has anything to lose by trying it. You might even agree to continue on the oral sulfasalazine to start with if this makes him feel better about prescribing.

As a 17-year UC veteran, it's likely you know more about your disease than the doc does. (My GI openly admits this, and listens to me.) Don't let him push you around. Get the facts to back up your request: the meds are topical, oral meds may not reach the rectum, rectal meds definitely do. I want to try... Then present it to him calmly.
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nightside of eden
Veteran Member
Joined : Sep 2009
Posts : 552
Posted 2/23/2014 10:29 AM (GMT -8)
Thanks everyone
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Old Hat
Veteran Member
Joined : Feb 2007
Posts : 5854
Posted 2/23/2014 10:14 PM (GMT -8)
I agree with above comments. It sounds like you have some inflammation in the lower sigmoid, which Canasa is unlikely to reach, so Rowasa would more likely help there. You could also try Cortifoam to help the rectum-- because it stays where you put it, unlike the liquid retention enemas, so you might try it during daytime when you're up & about. However, as ipoop mentioned, it's possible to have rectal inflammation that does not improve with steroids, and if that is really your issue you do need to find a gastro who can treat your UC knowledgeably with 6-MP or Imuran as a next step. / Old Hat (33 yrs with left-sided UC; presently in remission taking brandname Colazal)
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