Goodbye remission! Thanks for the good year!

I think you'll get back to a good place in no time. Sorry for the reality check.

:(

I would try them and see how it goes for a few days. It can't hurt right. Whatever its takes to stop it from porgressing. Have you called your doctor?

Maybe you want to add in a suppository during the day? Urgency would mean rectal inflammation right?

I hated being on 6 mp. And what ended up getting me into remission was Pred, Lialda and nightly Rowasa. Doctor said the same thing to me about the Rowasa. And suppositories seem to upset my stomach more than help and I hate the oil gas.

Yeah Rowasa in the morning is always iffy. If I get the urge for gas when I use them at night I have to hold it in until I don't think I will "leak". LOL.

I hope it leaves as quickly as it came.

This forum has taught me so much. And yes I am terrified of it coming back too. I may even have a little inflammation now. I can't decipher what is going on at the moment. I have a GI appt in a coupld weeks and may ask for a flex sig. I've only flared once, it lasted 15 months and started when I was pregnant so I have NO clue what to look for.

If you can hold the Rowasa during the day I would try that with the steroid at night. From what I understand the Rowasa is like aspirin for the colon so it can't hurt!

You know, in my humble opinion.....missing two nights in a row doesn't really "start" a flare...it's been there all along and it just kinds of reared it's ugly head because of the missed doses, that's all.

I personally, and we all probably do, seem to ignore our symptoms the longer we have this disease and tend to blame it on anything other than us ignoring it..like we missed a dose. Plus, even when we 'think' we feel well, if we ask any un-impaired bowel person..we are really screwed up gastrointestinally ALWAYS!! Our 'normal' isn't even close to the real world's normal I think.

My perfectly healthy wife poops like every 3 days...WHAT THE HOLY HELL?!?!? Where do we sign up??


I suppose it's all a matter of semantics, but I;m trying to make it sound less your fault than it is. You didn't start a flare as much as your body was already kind of in one but being held in check of symptoms by the meds. It takes more then a few days to really start a good flare.

stop beating yourself up! It was there always, it just was always there and popped up because you missed a dose, it wasn't caused by it....be well!

I'm not really understanding why, if you are blaming the missing of two nights in a row of Rowasa for bringing on a flare, why didn't you just return to the Rowasa?

Also Gary I think Im now past the point where rowasa nightly can get me out of this. Thats why I took the steroid enemas. Wishi couldt take some leftover pred i have in the cabinet. I understand imuran isnt bad for everyone but i want to keep as many future options in my pocket as possible. We only have so many options before surgery.

"True but all of us are kept in remission due to our meds."


well, except all of us that are in remission due to something other than meds -

Hmmm, time varies with Cortifoam. I do it until my flare settles (again, time varies) and than I will trade off with steroid sups. I am always simmering so cortifoam is used more than I would like. However, BBC, a member here goes to a top GI doc , Dr. Maria Abreau who said Cortifoam can be used 2times a week for maintenance. Just FYI. Good luck.
B

Hi there. I feel like any enema hurts when you have inflammation . As you heal they stop being uncomfortable. I am down to 1 or 2 cortenemas a week and doing pretty good!

@ Scott, pooping every three days is far from normal, I would be worried if I held toxins in my body that long.

op, just be good to your gut and get back on you nightlys

Im not.anywhere close to going on imuran and its just plain untrue that prrd makes your bones frail if youre on a short course of it. The one time I was on it was for about 7 weeks and I had zero trouble getting off it.