Ok, so some of you know I started Simponi 6 weeks ago, and aside form some lingering inflammation (I was severely inflamed and in denial) that needed some Uceris 5 days ago (which immediately stopped all lingering diarrhea and made me feel 100%) I feel this is a success for me. I'll be on Uceris for 8 weeks and my doc said that should take care of everything else.
Simponi will not always just snap you into remission, it can need a little boost then keep you in remission by design, depending on how bad you were when you start...just like any new therapy. I was the second patient of theirs to go on it, so he made me stay to speak to the other doctors to talk about
my experience so far, which has been great.
So, I asked my doctor (and the others) WHY Simponi instead of Remicade, Humira, etc. and he explained it to me.
PLEASE bear in mind that he is a respected doctor in the Chicago area that has a huge practice and this is his opinion based on facts, and I take it for what it's worth.
Humira and Remicade were originally for Crohns for years, that's what they were designed for. Over the years they found that it also helped UC as well, and eventually it was approved for it by the FDA. Although it was never really designed for it, they approved it because it helped and there was nothing else. The drawbacks for them are that they cause antibodies to develop in your blood as well as other side effects. It does help a lot of people.
Simponi is the FIRST biologic designed specifically for UC and nothing else. Not Crohns, nothing...just for us! Studies have shown a dramatically low or no chance or building up antibodies as with the others, and obviously as we have seen, no pain on injection and less if any side effects overall. That's why I didn't get Humira or Remicade.
Some drs will still prescribe those first, simply because of old school thinking, or lack of willingness to try a new drug, or just plain no knowing about
it. Not that it's wrong, every dr/patient has their own right, but I just thought it would be interesting to find out WHY I am on Simponi...I found it interesting, and maybe it will help some more of you....
Simponi is the first UC drug specifically for UC...less chance of antibody buildup and side effects, not to mention it's not a drug that isn't specifically for us....not a drug that accidentally we found to help us that was actually used to help another disease.
UC since 1975...that's right, 1975!!!...do I win something???
Currently on Lialda, Canasa,
Stress B complex vitamins, and Simponi
...I go back to BEFORE colonoscopies....here's a flashlight, 2mg of Valium and relax!
Allergic to Azulfadine, Immuran gave me pancreatitis
Prednisone, Uceris, Cortenema, all forms of steroids
Asacol, Rowasa, Colazol, etc.
Post Edited (Scott Z) : 4/7/2014 11:19:33 AM (GMT-6)