I don't mind giving as much info as possible.
Yes, I am very anxious/curious in how this is going to turnout.
I'm off the meds so he can see what is really going on, so I think the answers are yes to your questions. His word is "masked" nothing will be masked when he does the scope to hopefully get me an accurate diagnosis. Plus, the asacol is very expensive, if I need it okay, but if not, it's a lot of money!
I met with the GI and we went over everything (40 minute appointment).
He pointed out that the pathologist report (indeterminate) does not support the doctors report (UC possibly Crohn's) from my colonoscopy.
My labs came back good, stool samples and blood work, nothing indicating inflammation. He said he isn't saying I don't have something, but he can't confirm what I have from the reports. Not having meds in my system will allow him to see what is going on. I agree it sounds crazy but at the same time I had other stuff going on at time of scope and diagnosis (needed hysterectomy and gallbladder was about
done), I'm curious to know do I have ulcerative colitis or something else, Another type colitis, Crohn's, IBS? What if I don't need asacol hd 800 mg at the cost of almost $900 a month?
I used to take A LOT of ibuprofen. GI said it is possible that it had my colon in a mess. My Dr said I had two separate spots that looked like raw meat. He did biopsies, pathologist tests did not confirm IBD. I saw this on the reports and wondered about
GI said he isn't discrediting my doctor, but he cannot continue the given diagnosis, because it does not add up.
My son has Crohns had to have surgery and is now on Humira. My Dr used to be his Dr. There is more IBD in my family, so ???
It will be interesting to see what my symptoms are. When I was diagnosed I was in a lot of pain due to uterus that NEEDED to come out. My doc did scope because I started passing blood on stools. It took a little bit to figure this out with continuous menstral periods.
Some of this may have been repeated, I've copy and pasted some of it.
50 yr old female, possibly in slight flare
UC Dec. 2011, diagnosed indeterminate
Hiatal Hernia Hysterectomy Gallbladder Removed, Raynaud's
(Asacol HD 800 3x/day Mesalamine enemas Anucort-HC - these meds temporarily stopped for 2 weeks to prepare for colonoscopy)
Omeprazole Lisinopril-HCTZ Multivitamin calcium/Vit D
Post Edited (Coffeencake) : 4/10/2014 7:17:31 PM (GMT-6)