Hi folks! Figured I'd let everyone know how I'm coming along- I went to see my surgeon today to finally get all my staples removed- things are looking really good. There is a small area near the top of my butt that's open- he said it will fill in on it's own, just keep it clean, do sitz baths, etc. I did ask for more pain meds, despite feeling like a junkie, & he freely gave me another scipt for oxycodones. My love affair with dilaudids comes to an end...!!! I find I really do need them still- only 2-4 per day, but it helps! He did say try to take them at longer intervals, & to give Extra Strength Tylenol a try too. The path. report came back from Boston- no cancer, no sign of Crohns, just chronic severe ulcerative colitis. I go back to see him in another 3 weeks, & barring any weirdness, that's it for the surgeon & myself! I'm still doing really well with the bag- I've gotten 5 days wear time with both bags that I've put on myself- I need to change tomorrow, & plan to try a Hollister set-up. I swear it's these moldable wafers- they're totally idiot proof! It's been 2 weeks since my surgery, & I already feel 100x better. Even with the tiny open butt wound! Amazingly so, I had absolutely zero complications. Thanks everyone, for talking & walking me thru this- your help has been immeasurable!
diagnosed w/UC 2002
Tried Asacol, Rowasa, Pred, Cortenemas, Uceris, Rocephin, Cipro, Flagyl, Imuran, Remicade, Humira, turmeric, slippery elm root, marshmallow root, probiotics, homemade kefir, yoga, meditation, mindfulness, reiki, SCD, vegetarian, dairy free, nothing processed, gluten free... proctocolectomy w/end ileo on 4/14/14!