counting success stories with fts (continued)

I don't think it's fair that you have to start another topic for this. If the Uceris threads and other threads pertaining to pharmaceutical drugs can go on longer, why couldn't the other one have.

*shakes head in disbelief*

Anyhow- I'm looking forward to the updates, Sharon!

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"Every adversity, every failure, every heartache carries with it the seed of an equal or greater benefit."

Sharon.. don't really know how to console you other than to tell our experience. Loved one has this four years no real success always reckoned it was the chemicals in our food caused it so adopted this approach and it works..80 percent drop in UC affects already Virtually gluten free, wheaten free and sugar free diet, no junk food sop food takeaway, scrutinize everything toeat got new probiotic VSL 3 and strong exercise, remarkable because it works. Nothing really worked prior to this so the result is amazing. We firmly believe that UC is a bug which gets n when the digestive system is heavily stressed and working on this we are reversing the process to get rid of the bug, It has to be a bug because when read the expeiences of people with UC it shows this and that is why we did what we have done with loved one.Get out into the sun for vitamin D and get alovera in pill form.

Thanks linc495. I've already been on a very very very restricted, no processed no sugar no anything, diet for 14 years! I make my own food from scratch. I've already written above what I have and what I avoid. Unfortunately at the moment even having just boiled vegetables, which wasn't too bad before, causes all these horrible symptoms to come back.

Have you done the fts every day?

Hope the loved one keeps doing well.

Sharron

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fm, 47 yrs
moderate-severe UC Sep 2000 (triggered by antibiotics). Not 1 day of remission! could gain some ctrl by avoiding certn food until 2012.
have tried lot of alt therapies: Gerson, homeopathic, reflexology, Chinese med, diff restrictive diets, meditations, prayers, etc. Nothing helped!
2013: 5-ASA for 3 m' and ended up in hospital w severe liver infection.
currently on strong probiotics.

Update:
The bad news - I couldn't do it yesterday because, as often happens, my son had diarrhoea. I wish the local people that are willing to donate their stools would call and say they don't care about a Dr's supervision. I'll get in touch with the GI and see whether there are any news from Helsinki committee. She was very optimistic but I really doubt it's going to be approved.

The good news - I am feeling better! Although it's too early to tell, I think it does work for me. Yesterday I ate fruit, fresh and boiled vegetables, boiled and fried chicken, some home made Tahini, which had always been least problematic for my gut. I also had quite a lot of almonds which had always caused lots of suffering. In general, eating nuts and seed, which I truly love, causes not only the normal symptoms from the lower part but also very very embarrassing uncontrolled smelly burps. It's the one thing which evey so often caused me to lose my good control over the food intake. I ate them yesterday because I couldn't wait having them and also couldn't wait knowing whether fts are worth doing. It's not that I feel 100% cured but I know for sure there is an improvement. Even my lower back doesn't bother me that much just now! Perhaps one of these days the joints will be back to normal again. I find it difficult going up the stairs due to inflammation in the knees.

I'm also happy to think that, despite all the problems my son has with his digestive system, this trial suggests that he has in fact a good balance of bacteria in his colon, a better one than mine anyway!

Good luck to you all and just ask anything you feel like.

I will update you tomorrow.

Started home fts on 1/5/14. 1 infusion so far.

Sharron

Post Edited (sharron19) : 5/3/2014 4:15:52 AM (GMT-6)

update:

My son hasn't been back to himself yet so I couldn't do another infusion. Yesterday (Saturday) was a strange day in terms of the symptoms. I had ample of visits to the toilet but it is was all solid! I've no idea where it all came from. Tons of it. I've done only one transplant so far, it wasn't a great amount that I put in and that happened on Thursday evening. I don't remember the last time seeing a solid stool. Also it didn't have that horrible smell I'm so used to. I didn't see mucus. However, I wasn't feeling great. In the morning I was okay but as the day proceeded I became weak and somehow feverish. The visits to the toilet were so frequent that I didn't manage a simple task such as fixing a meal (my nephew was staying over). I suffered from discomfort but definitely not the type I had ever experienced before. First I had pain coming from the appendix area. Then the pressure was more from an upper part of the gut. Perhaps from the stomach area. The ft definitely had an effect. This morning the old familiar symptoms are back again. No solid stool.

Despite the uncertainty I feel at some moments I'm not going to give up on fts. From this forum I gathered some people get worse before they get better. This week I'm working tomorrow and on Wednesday so I will not risk it and wait with the next infusion for when I get back from work on Wednesday. (as usual, I started my clear liquid fast last evening) Hopefully my son will have a nice stool ready and waiting for me in the fridge on Wednesday evening.

Guardian7: thanks for your encouragement. My son doesn't have traveler's diarrhoea. I think I've already written quite a bit about the history of his digestive problems. I know I should you a better donor but unfortunately that's all I have at the moment. If I don't get the permission from the health board and I don't get better using his stool I will work hard on getting a sifferent donor who doesn't ask for a doctor's supervision. I already have two of them by they don't live nearby.

Started home fts on 1/5/14. 1 infusion so far.

Sharron

Post Edited (sharron19) : 5/18/2014 3:05:44 PM (GMT-6)

Update: No much to write. about to leave to work. Have my clear concentrated chicken soup packed in a flask. Hardly slept at night and that happens quite often recently. Hope I will be able to do the next ft on Wednesday evening and not wait until Thursday like last week. Otherwise, I'll have to carry on the fast for a day longer and that might be more difficult this time. I am losing weight.

Guardian7: thanks for you kind concern. You might be right, the weakness could be the result of the lack of calories. I'm not sure about the carbohydrates. People have written completely opposite opinions with regards to its consumption. I used to eat a lot of brown rice and potatoes and it was okay with me. However, recently I've become cautious about feeding the bad bacteria with sugar. Anyway I think I will start having it again as soon as the fts start kicking in. I've never tried the coconut water. Where do I get it. I'm very cautious about introducing anything new just now.

Wishing you a full recovery.

Sharron

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Post Edited (sharron19) : 5/18/2014 3:08:15 PM (GMT-6)

Update:
I'm off work tomorrow so yesterday evening I allowed myself to eat . I had the boiled vegetables, herb and chicken from my soup, boiled beetroots, a small amount of fresh salad and a home made tahini sauce (tahini, lemon, parsley, garlic and water). I'm back to square one with the usual horrible symptoms. Just to remind you, all these ingredients had the lease effect on my gut until the condition deteriorated in 2012. My son was still not feeling great and didn't go to school. He had one BM and it was diarrhoea again. I really hope he produces a nice solid stool on Wednesday evening and on each consequent day at least until the following Saturday. That might allow me some understanding toward the efficiency of the fts.

Thanks a lot Guardian7 for all your informative advice and support. Perhaps that explains why recently I couldn't fall asleep easily. It was never an issue before unless it was due to the obvious symptoms. Now I find it difficult to fall asleep even after a long clear liquid fast. However' perhaps it is the low consumption of calories itself that is causing the sleep problem. In any way, I plan on not having anything to eat until the next ft and then very little until the fts kick in. That was the reason I gave myself when decided eat something last evening. I know it is imprtant to eat during fts but after my initial experience I can't see how I will be able to administrate it unless the gut is clear.

I hope you are all getting better.

Sharron

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Post Edited (sharron19) : 6/5/2014 4:06:56 PM (GMT-6)

Thanks for the update Sharon.

That your son has diarrhea and that you are waiting because of it is probably a good idea. Could be a gut bug or something going around. Your son also is around tons of other people @ school, so his bacterial diversity must be... interesting to say at the least.

I can't believe it. No horrible smelly burps (one of my reactions to seeds and nuts from uc onset). Could it be due to this one ft I administrated a week ago??? My son came back from school not feeling well. He is weak but doesn't have diarrhoea any more. In fact he hasn't been to the toilet since the day before yesterday! At about 12 he called me saying he needs the toilet but can keep it in for a few hours. Great, seems like I'm going to perform the next infusion this evening! So far I've been eating the chicken soup, walnuts and almond this morning.

---

fm 47
mod-sevr UC Sep 00 (triggered by antibiotics). Not 1 day of remission! could gain some ctr by avoiding cert food until 2012.
have tried lots of alt therapies: Gerson, homeopathic, reflexology, Chinese med, diff restrictive diets, meditations, prayers, etc. Nothing helped!
2013: 5-ASA for 3 m ended up in hospital w severe liver infection.
currently:
strng probiotics.
fts from: 1/5/14

Sharron...So happy to hear about your improvement and praying this to continue...

 You mentioned your son not feeling well, If thts the case, I  would recomend to slow down  FT infusion,until he gets better. I really dont want your positive climb going down....

Best wishes and prayers....

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Daughter 20yrs- UC Pan colitis.
Diagnosed in May 2011
Currently in remission after the initial flare- SCD diet (2011-2013)
Currently avoids outside, processed/ packaged foods, sugar, milk
Current meds- Lialda- 4 tabs a day.
Did home fecal transplant for 5 days for C.diff in dec 2011.

Thanks for the update, Sharon.

A vast majority of acid reflux cases (including even non-UC pathology) are due to an underproduction of stomach acid. I learned this the hard way because I was on reflux pills for a darn long time and it just made my symptoms worse after each subsequent withdrawal. Then I found studies linking PPIs to a plethora of health issues and had to get the hell off.

This is in part due to the absence of lactic acid bacteria or due to the absence of conditions required to necessitate the fermentation of lactic acid bacteria. These bacteria include both the lactobacilli and bifidobacterium genus. Many of these lactic acid bacteria thrive in acidic environments and thus need to be resupplied every now and then. Apple cider vinegar, condiments like mustard, and even wine may seem counter-intuitive at first for fixing reflux, but will give the bacteria the environment to thrive and ferment the foods we are eating.

To me, fermented foods help solve this because they have billions of the same lactic acid bacteria found in our digestive tract, except everything is predigested for us (thanks to the lactobacilli in these foods). This is why some can tolerate fermented cabbage (sauerkraut), but not cabbage by itself.

I can't explain it any better than Chris Kresser did in the article here. Scientific studies and data are all provided for anyone that wants to verify.

Post Edited (Guardian7) : 5/9/2014 10:25:26 AM (GMT-6)

Since my son has had diarrhoea again I've decided to do the next transplant, if he is better, on Wednesday evening. Meanwhile, I'm copying the list from the previous thread and hoping to get more information from you.

success stories:
1. FecalTransplantForUC (Michael): XXX yrs male; severe UC for 12; donor - 28 male friend living together during infusions; 5 weeks of daily transplants at home in June-July 2011; gained remission a week after last FT (when added anti-depressants); still in remission, no medication (as of Sep 2013).
2. Curl: 36 yrs make; dx - ; donor 36 yrs wife; 27 days of daily FTs.; in remission since April 2012, no medication. (as for Apr 2012).
3. Bloom93: 19 yrs female; dx - May 2011 pan colitis + c.diff. ; donor - 12 yrs brother; 5 days of FTs at home; back on medication and 90% SCD; in remission. (as for June 2013).
4. FT is the REALDEAL; male 27 yrs; dx - pancolitis for 2 yrs; donor 14yrs brother; 19 days of FTs, started beginning of April 2012, symptoms free after 10 days; completely cured. (as for June 2013)
5. Lolil: 35 yrs female; dx - July 2011 severe pancolitis (first flare Dec 2010 while pregnant); donor - husband; about 10 daily FTs; antibiotics prior to Fts, Imuran 2 months before, during and shortly after FTs; currently: Lialda, pre natal vit w/DHA, VSL#3 DS w/Kefir; results and current state of UC: in remission. (as to June 2013)
6. Adventureuc: 36 yrs female; dx – symptoms since March 2012 "came about as a result of being pregnant"; donor - XXX yrs husband; FTs - 7-8 FTs at home in August 2013; Took Uceris March-August 2013; results and current state of UC - positive change was almost immediate, getting better every day since FTs, currently on no meds. (as for Nov 2013)
7. delta30: 35 yrs XXX; dx – March 2013 procolitis, later colitis with inflammation in the rectum and right colon; donor – XXX; so far has done 14 infusion, took 1 month antibiotics before FTs. results and current state of UC - doing well, no meds. (as for Nov 2013)



Not sure:
1. Soystud: male, XXX yrs when started FTs; dx - Dec 2003, XXX (dx); donor - XXX yrs son; 5 FTs; results and current state of UC - XXX.
2 Edbar: 9 yrs boy; diagnosed spring 2011 descending and most transverse colon; donor - XXX yrs XXX; FTs - started Dec 2011; results and current state of UC - gained remission twice - 8 and 5 months, XXX (current situation); Used pred to allow retention at first stage.
3. Loolover: XXX yrs XXX; dx - XXX (date, condition); donor - XXX yrs XXX; FTs - recently finished 14 FTs over 3 weeks; ressults and current state of UC - during process symptoms were "roller-coaster", "have been improving since last FT but still question its efficacy".

Fail stories:
1. Probiotic: inflammation is more severe deep up than rectal area; donor – live in gf (now wife); 4 days of FTs at home, "didn't hold it long enough"; got worse during FTs.
2. Killcolitis: XXX yrs; dx - XXX; donor - XXX yrs wife, 3 months of daily FTs, date of FTs XXX; Condition got worse. 6 FTs???
3. Bananagirl: 23 yrs female; dx severe uc, date of dx XXX; donor – XXX yrs female relative; 8FTs, date of FTs XXX; fever, nausea, diarrhea during transplants.
4. Joma: 41 yrs female; dx 1998 pancolitis after taking antibiotics; donor – 1 yr son; daily FTs for about 3 weeks?, date of FTs XXX; good retention. (what was the reaction to fts?).
5. MaxMillan: XXX yrs XXX; dx -2010 IBS, proctitis, 2012 crohn(?) fructose and malabsorption, non toxigenic, c.diff; 6 FTs at the CDD in Sydney, date of FTs XXX; condition got worse after FTs.

If you are in one of these lists please do complete the information as much as you can. Any update on your situation is welcome.

wishing you all a complete recovery,

Sharron

Post Edited (sharron19) : 12/20/2014 3:17:40 AM (GMT-7)